I called my Doctor's Office

Well, I cancelled my Appointment with my Doctor for the 10th of January ! I told them that I am taking a brake ! The Nurse told me to give them one more Blood test on Monday . I said " No problem !

Disney World here we come !

Well , everything is getting better ! We are finally made up our minds ! We are going to Disney World ! Ad ll the arguing is over : I got what I wanted  <<< hehehe >>>
The Kids will rent a car in NC. and they drive here ! Then they spend the night and the next day we are leaving for Orlando ! I am so excited !!!!
I will enjoy this trip and soak  it all in ! That will keep me going for the next couple of month ! I will rent a motorized Wheelchair !

He treats me like shit

Yesterday my sweet Husband told me that he is sick of me ! WOW , and I am cruel . I was so stunned that my mouth stood open for a while !
Oldest son called and found out from me that W. called Pat and them and invited  them to his house ! It really upset me that he didn't think he should have talked to his son first . When our son called later W flipped out after he hung up with him . He screamed at me that we are conspiring against him . I am sick of being treated this way ! So I will no longer participate in his  " Mind games " ! I guess everybody is on his own ! I know that I don't deserve to be treated like this , it is bad enough that I feel so weak and sick !
But that just wakes up the inner Bitch in me and I will just no longer talk or do anything for him ! No more ! Needless to say I went to bed at Midnight , hoping he would sleep in the Living room again . This morning I woke up and he was in Bed , what really made me get out of the bed . I took his Truck and went to 2 WM just to get me some stuff . The place was packed ! I started sweating , it was so warm in there . but I am home now 14:30
and I can't wait to get back in my Bed and just vegetate ! I will NEVER forgive him for his Attitude ! NEVER !  I made up my mind ! I will start to workout and get stronger and stronger ! World watch out ! I will free myself !

The School shooting haunts me

Woke up with this incredible Pain in my Kidneys and Stomach ! No ; instead of taking a Pain pill right away , I tried to just handle it . After Hours with this Pain I finally took one and also 2 over the counter pain pills . The worst thing is not having Hepatitis c and Cancer ; it is how isolated I feel . Friends that I know for Years have not yet called or mentioned a few nice thoughts . Now all my Friends that I still have in  Germany and all over the United States ; they call :) People that I know for 30 Years are Liane ,
Gitte , Elke who lives in Indianapolis , Doris who lives in Texas has ALWAYS been there for me ! She was in School with me and when KATRINA happened she was such a good Friend ! A couple of days ago she send me a Snow Globe Music Box ! It is beautiful . And Elke send me some " Goodies " from Indianapolis :) It is moments like this where I feel so grateful and blessed .
Well , needless to say I must have done too much ! I decorated , did my floors did Laundry and put Clothe away . I made a Bag for Veterans to be picked up . So that is probably why I felt so weak today and I will try not to do so much all in one day .
This School shooting had me so depressed since it happened . Such Babies , just gunned down !

Finally Chemo !

Thursday I went to Chemo and I felt like I was on Speed from the 10 Steroids I had to  take ! When the Nurse hooked me up it felt like MY FIRST CHEMO ! I brought some gifts and gave it to the 2 Nurses and it made their day !
Charlotte and Theresa :) very nice Nurses !
We been fuzzing about the trip to Disney , he wants to go to a  cheaper Hotel . Well, I just have to plan different but I WILL GO TO DISNEY !
Friday , Saturday , Sunday and Monday I just stayed in Bed . The Pain in my Joints was so bad that I cried ! But then my Kidney hurt and also my Liver . I felt like nobody gives a shit . I noticed that I get more depressed ... maybe the Holidays ?

I got some new pictures ! Ho ho ho :)

No Eyelashes or Nose hair !

RIP HELGA

Gitte called me yesterday and told me that her Mother died ! I was shocked but she has been on my mind . Gitte was really in shock ; I could hear it in her voice ! Life is crazy ! Before you know it your life is over . It is this part that I don't like .
I have been going to bed early and getting up early , yeah ... I have to take care of myself :) Weldon is in his sleeping stage ( Stays up until 3 AM and sleeps til noon ) Yes that really helps my Mood :)
The past 2 days I have been putting a few Christmas Decorations up . Very small Tree and lot's of Stuffed Animals ! Changed the Table cloth and put some more up . Now ,I told Hubby if his shit is not out of the Living room soon , there will be no Christmas ! But I really really need to have Christmas this Year . I don't know why ; or do I ?

Again , no Chemo !

All weekend I been trying to stop my Anxiety about my next Chemo ! This time I thought I was smart and scheduled my Chemo and then showed up at the Hospital ! Well , this time the " Chemo General " told me to get a blood test first ! They took Blood last Thursday so what the hell ? Anyway , since I promised my self and my higher Power , that I will no longer STRESS , So I went next door,  gave blood and while we where waiting for results I unpacked my I pad , took my Lunch out <<< which consisted of a piece of cheese cake and a Banana >>> when the Chemo general told me that my Platelets where too low to get my Treatment ! I was so angry ( but I did not show it ) It was so hard in the morning to get up so early 6 AM to take the 5 Pills for the Chemo so it won't make me sick  . But without the Chemo those damn pills made me so sick that I could not function after I got home . By the way my Platelets where at 62 and I need to have at least 100 or MAYBE 90 ! Very disappointing day ! Weldon has been feeling really weak also and sleeps a lot .

Ready for Chemo on Thursday

Everything is shrinking ; in my Body . The Dr. said that I am responding well ! What a relieve ! So this Thursday I am going to Chemo and by God I will sit there doing  my 7 Hour IV without complaining ! I have to make me a sandwich to bring it . And I will bring my I Pad :)

It is in your hands GOD , your will be done ...

So tomorrow is the day of TRUTH !
Last Night I was up all night because I had to take a Pain pill and they keep me up , but that one pill helped . I haven't had pain like that in a long time ( didn't take anything for pain except for Aleve ) But I did a lot on the Computer and checking on Deals in Disney World .
I also started to write my Christmas cards , so I will not procrastinate and get them out  on time . I also did our annual " Goodies  Halloween and Veterans Bags "  Dr. Offices . 26 bags for the staff and 3 for some special people there :) Weldon took stuff to his Heart Doctor's office and made them happy !
For my Cancer group ( Nurses and Dr. and the Volunteer Guy that holds the door open )
I also made some little bags with some Beads and Candy and a Flag .
I put something together for 3  Friends  of mine .... And then Christmas comes !
Been awake for 34 Hours and MUST rest now !

Hepatitis C and Stage 4 Lungcancer

Men can be so insensitive . I am sure that it isn't easy to deal with the stress of my illness with Hepatitis C ; and now with Cancer , Sometimes I feel like I am a burden and I hate to ask for help . But I am so hoping that this  " Pet Scan " has a good outcome ! The guy stuck me 3 times and guess what ? I am allergic to Iodine so the Contrast would have made me sick . But I am hoping that I will get news on Thursday ! I am trying to convince my Hubby ( sometimes he is a Saint and part time asshole ) NOT to go with me on Thursday because I don't want him to be there when the test's are not good ! I can handle the truth but not him ! I don't want him there !
Sometimes I go by what I was raised with ! Born and raised in Germany . I am a strong Person that hardly showed her feelings  before I came in this Country  . Now I am all about Family and love and togetherness .
My Citizenship was on of my highlights of living here ! My first President I voted for was Bill Clinton .

 

I see this World in my eyes  ; a better World , without killings and Wars . And mostly Neighbors helping Neighbors and Family helping Family ! No hate , no anger only Love ! Wouldn't that be just awesome ?

Husband get's frustrated

Thanksgiving I walked home from Chad's and it did me good , I have been pretty active in the last couple of days . But yesterday my other half slept til' 4 PM ! So I did nothing after he got up . He was very moody and when I told him a story about a T.V. Show and he said " You told me that at least 3 times ! Boy , that hurt . The he said  " I understand since you have only e to talk to " Needless to say that I was pissed ! So today will be a very Quiet day :)

Good Night of sleep

I slept wonderful last night ! It was such a wonderful day yesterday and I got to work outside and I enjoyed it so much . I also cleaned the new Shed out and took my Christmas container out , it has  a lot of  " Goodie's  " in it .
Today I just want to do little Gifts for Christmas ! I am not sure how many gift's I need  and then bring some of them to the Veterans Club .
Well, I am going for now !

Both of us couldn't sleep last Night ! We finally went to bed around 6:00 AM ! Therefore we slept until 13:00 AM . Sometimes we get like that . I was on a good time schedule . I would go to bed around Midnight and get up in the morning around
8:00 AM  .The last 3days I have  felt pretty good and I overdid things ! I feel every muscle in my Body .
I cleaned out some of my paperwork and emptied some of the Crap I had in my Closet of my PC Room ! Wow, you could not believe the stuff I found .
Dr.Morales  and his Crew , Dr. Casey's stuff is done and his crew , Dr. Albright is done and his staff ! I also made some little things for the Nurses in the Cancer Hospital  ! The only one I have left to do is Dr. Epps and his 2 employers .
Today I replanted some of my plants and got some Oregano from Anastasia ! I want to dig me up  another part of the yard where I can grow a lot of Vegetables . That will be my Project since it will take me a couple of days to dig it up . Maybe I just dig it up and plant my stuff next Year ! We will see !

I find that when I write in the Morning , it is harder then writing in  the evening .
Might be because I am more relaxed toward the Evening .
Anyway , hubby felt tired all day because his restless leg Syndrome kept waking  him up and of course I wake up too ! He stayed in Bed until 13:00 and was sluggish all day .
I worked some more on the " Goodie Bags " for the Doctor Offices and have enough made for Dr. Casey's Office !
I will also get a Head count for Dr. Albright's Office . Then I have something for the Nurses in the Cancer Hospital ! Not a whole lot but a little bit of appreciation !
Yesterday I did a lot of searching on the Disney Website wrote all kinds of things down and will print it today .
My Hep C is still there and it seems like I will be right : HEP C IS NOT GONNA KILL ME !

Today is Sunday and I got up at 11:00 AM  since I stayed up a little later last Night .
Hubby is still sleeping but he got up to get the Paper !
Yesterday I did get some things done . I cleaned the Kitchen and moped my floors . I did 2 Loads Laundry and will do some more today ! Yesterday I took a pain pill and that did help me with my energy !
I am so excited about the test on the 26th !  I will hear the truth ! And I will handle it , no matter what it is !

I have been watching a bunch of News in the last couple of days ! It is a shame how everybody is talking " shit " about our President ! I am getting so sick of it ! It is Racism and you will not convince me otherwise ! Why can't  People just live with one another ?
Let's face it : They might call themselves Christians but they have no clue about Christianity ! Never in my life have I ever seen this kind of Racism and hatred .

Why are we calling our self's the UNITED STATES OF AMERICA ? When in reality we are the DIVIDED STATES OF AMERICA !

The Nurse called me this morning and asked me how I am ! I told her that I had to much going on right now . I just can't get myself to go back over there right now !
I put together bags with Veterans beads and stuffed animals and some candy for Dr. Casey , Cheryl and Amy . Needless to say ( he been shopping again )
In Order to get the Guestroom back in shape , I better make all the Packages for the other Doctors . Why do I always end up having to that ? Every Year he has best intention's and I get stuck with the Job . When I was healthy I would have enjoyed it .

No use in complaining because he does so much for me , by " making groceries " . So , we need each other now .
I am posting some of the pictures of Halloween ! 

I will do no chemo until after Thanksgiving

Made up my Mind ! I will not go to Chemo until I take this Pet Scan on the 26th and on the 29th I will see my Dr. to hear the results ! Then I go from there ! I still feel bad l everything tastes the same ! I am always tired and I lay in Bed a lot ! But at least I have no pain right now !
The worst thing about Cancer is the fact that you have NO POWER over this damn cancer ! And that is what brings me down ! I am still depressed ( even though I am on Anti Depressant ! )
I am not afraid to die , but I surely don't want to suffer either . I put it in Gods Hands and for now because I don't have any Control over it .

Seen my Dr finally a day after Election

Seen my Dr. on the 7th and had a long talk with him . I told him that I need a light at the end of the Tunnel and so he scheduled me for a PET SCAN on the 26th this month ! He did tell me to fight and I told him that I am tired of Chemo that makes me hurt all over and I am not sure if I wanted to live my last Years in that kind of shape !
Then that afternoon my Husband is telling me that he don't feel good and by 18:00 he asked me to call 911 since he felt like a stroke ! Our youngest son came over and the Fire department and Ambulance took him to SMH and I stayed home because I was supposed to get Chemo . That night I could hardly sleep and when I finally slept he called me from the Hospital . They kept him overnight and I was glad because I wanted to know what went wrong . Later on that Day I went to see him against my Dr's Advise but I had to go  and had no choice ! Now I really do hate this Hospital but they are the only ones to have a Neurologist  ! When I got there our youngest son was there and  he asked me if I was done with the Chemo and I called in that day that I could not come in because my Husband ! But I said that they called me and told me that my Platelets where 2 low for Chemo ( Little white lie ! ) But I just can't be feeling bad when he needs me ! But I felt bad anyway ! I stayed 4 Hours and went home ! The way he was talking to the Nurses got on my last nerves . At home I called our Grandson and told him what is going on 1 we TALKED  for a long time and he told me NOT to smoke ! I did confess to his Girlfriend that I did buy a pack and smoked one ! I know he is right and I am totally ashamed that I still sneak Cigarettes ! But sometimes I tell myself that it doesn't matter with Stage 4 Cancer ! Let's face it , it is the Depression that makes me smoke ! But I need to get stronger to fight this damn Cancer . Friday I was able to take my Husband home ! He acted so weird ! He hugged all the Nurses and blew them kisses ,

Depression

Living with Cancer is weird ! Some people just don't get it . I am lucky I have a few Real Good Friends ( Liane , Doris Elke and Teri ) I am so tired of my bald head !
My Husband's Brother and his wife came to see us for a few days ! I felt so good and took it as a " Miracle " because right after they left I was sick again !
I eat yoghurt and Grits and maybe some Ice cream . Tomorrow I have to give Blood Tuesday I will vote for OBAMA and Wednesday I will see my Arrogant  Doctor that will really be surprised ; when I tell him how I feel !
Tired ... always tired . I am tired of being sick and tired

Finally Chemo again

I finally got my Chemo again ! Platelets did rise some ! Even though I was so nervous all Night and hardly slept ! It was raining Cats and dogs when I went at 8AM ( Which is in the middle of the night for me ) Now I am waiting on the harsh side Effects , My Fingertips are still numb and I eat  very little !
Daniel and Jody are here and it did feel good to be with them ! I just had to rest often and they understood !  

My Garden

So many things have changed in my life ! And I am grateful that I have another Day . I watch my Humming birds in the morning and in the evening ! It brings me so much joy ! One of my beautiful Lilies that my Niece gave me years ago and it was in full bloom !

I named her Christine ! After my Niece . My Garden has become my Refuge ! Here are some Pictures !

Our Front Yard !

Our Back Yard !

Front of the House
My Yard gives me peace ! I know that I will fight this Cancer with all I have ! Here is a wonderful Painting in one of my Guest rooms , that I bought @ the French Market in Nola

Our Super Dome after Hurricane Katrina  below the man with 2 Tears running down his face ! Yes , I can really relate to this picture ! The Artist signed it and there are only 2000 Pictures . I got lucky !
I look at life in a different way now ! I love to write but I don't always feel good and fall behind . I have changed my Will ! And I am putting nothing off anymore !

No Chemo again !

When I went to the Cancer Center yesterday ,  I asked for the Chemo Nurse and she said that the Dr. is going on a one week Vacation ! So all these weird side effects that I am going through , like Numbness in my Fingertips , Nosebleeds , Nose pain , weak , irritable  my neck started hurting off and on ! I asked if I can see another Dr. and she said no !

So today she calls me and told me that AGAIN I am not able 2 get my Chemo because my platelets are down to 56 ! I want to get this over with !  

I don't know how to express myself sometimes ! Been doing a lot of Soul searching in the last Year . I love life ; always have ! But I also know what Cancer stage 4 means ! I have my affairs in Order ! Leaving some Letters for my loved ones !
Now I have 2 get my House in Order ! The Chemo does not let me function normally so I have closets full 2 the rim one Guestroom is still filled with Boxes ! Our health is just so bad right now that we are not able 2 do a whole lot . But I managed to get the "other" Guest room ready , it took me 3 days ! We are getting company from my Husbands Brother and his wife from Florida !
I went to get my blood taken and they stuck me 3 times ; and finally they got lucky !

On Thursday the Agony of 7 Hours Chemo again :( 

I feel good because we skipped the Chemo

Today is Sunday : which makes me anxious already because my Chemo is on Thursday ! Right now I feel so good and I know that will be over on Thursday !
Hubby feels better but his Bruise is getting all kinds of Colors : black yellow , purple :)

Stage 4 Lung Cancer

I didn't get my Chemo Thursday ( 09-27-2012 ) My Platelets are getting low ( still in the 60'tis ) Last year I was down to 5 !!! I just want 2 make it through this Chemo ! I was " moody " yesterday ! Then I noticed that I haven't taking my " Bitch " pills in 2 days ! So , now all I have 2 remember is 2 take them . I will write myself a note and hang it in my Bedroom .
I been thinking a lot since I have been diagnosed ! So much has happened in this last year
so much change ! I don't like " change " but that is just the way Life is . Change is needed and I don't have 2 like it ! I been thinking of my Dad ! He was 56 Years old when he died of Lung Cancer . It was quit a shock for my Sister and me . Now I am faced with the same thing and I am trying so hard 2 stay positive even though I know the outcome ! You don't have to be a Rocket Scientist to know what " Stage 4 " means and I am fully aware of that . That is why I have to go to Disney World with our Grand Children ! I promised them and I will keep my Word ! All my Papers are in order ! I changed my Will on May 23rd , a day before my Neck Surgery and I have written Letters for all the people in my Life that care ! Just in case I die ...

It has been the hardest YEAR EVER

On Thursday we had to call 911 because Weldon's Heart beat was below 40 and his blood pressure was high ! I stayed home because there was really nothing that I could do , my Cancer does not allow me to go to ER's and Hospitals ! But around 13:00 I drove to the Heart Hospital to see him , when the Nurse told me that he needed a pace maker and a Defibrillator ! What ???? Surgery ?????? Please don't tell me that ! But it was true ! At 14:00 he had Surgery and around 18:00 he already called me ! It was so good to hear his voice ! He told me to stay home since the Dr. told him that he will go home the next day .
So , I left a message on my FB for everyone ! I was just so wore out I went to bed at 20:00 !
I picked him up at the Hospital and he looked good ! Except for the purple Hair ! He just wanted to support me in my Cancer ! What a Man ! I am so glad that I have him home again since I need him so badly !

My Friend Bernd Mueller died !

Well , what can I write ! I am still on Chemo every 3 weeks  I hang on a Infusion ! I hate it because it is for 7 Hours ! It is boring and you try like Hell to act like nothing bothers you ! So any people there : lot of old ones ! Sometimes you see the fear in peoples eyes !
The last couple of days I was in a Daze , when I found out that Bernd Mueller died and the found his Body after 4 days ! He laid in Bed DEAD ! I miss him ! He was a good guy !

Cancer ? No way !

I haven't written much because this Blog was so posed to be about Hepatitis C only ! Well , maybe some other greater Being is making me write about Cancer to now .
When I started this Blog I really thought that it is good to write about it because it helps me vent ! Well , I guess now it is a Hepatitis C / Cancer Blog !
It is so overwhelming  when you first get diagnosed and it isn't a easy thing to accept !
I have done a lot of research on both Illnesses and all I can say is this : " God never gives you more then you can handle " but why is my Back starting to hurt ? " I feel ok today . Last Thursday I had my Chemo and it hit me and kept me down for 5 days ! Could not get out of Bed ! And all I wanted to do was lay in my Bed ! Today I feel ok even did some Laundry and cleaned our Guest room out just in case someone wants to come see me ! I also cleaned the Camper changes all the sheets and put them back on the Bed ! At least I am ready 4 the next Hurricane ! No , I will not let the Devil win !

It has been a long time since I wrote on my Blog ! I received terrible News in April 2012  . My Neck started to hurt when I was trying to cut a Tree Limb ! I went to get a X Ray on April 16th . Then I got a MRI and my Doctor said I have Stage 4 Lung cancer ! First I was shocked and it  would not seem to sink in . By the time I came home ( don't ask me how ) I was trying to cope . My Husband asked me what the Dr. said and I said to him " I have Cancer " We both just looked at each other , not knowing what to say to each other ! Then my Doctor called and talked to him and it began to sink in slowly !
For the next 4 Days both of us went into the longing Arms of Depression ! I had  moments where I would just break out in Crying spells . FEAR set in ! Me dying ? No way ! I will spare you from the Details . But on May 23rd . Dr. Epps had to operate on my Neck ! It was so painful when I woke up . I could not move and I had so many people in my Room and it aggravated me so much . 

Sleep study

Weldon has been in the Sleep Study and they found out that he stops breathing for 1 Minute and a half , 7 times in one hour ! Well , the Sleep apnea has gotten  worse . Now they  also want to  check his liver ! Now that makes no sense to me , since he has Lung Problems ... But I am more worried about the bad cough he has ! It has gotten so bad that he hardly gets any sleep ! And then he is gasping for air . There is defiantly something very wrong with him ! I am waiting for the 5th now when they will do the Pulmonary Test . This waiting and worrying has me a little freaked out ! I have seen such a decline in his health the last couple of weeks and I just want the Doctors to find what is wrong with him .
I am not complaining about having a sick man :  but I need answers and so does he !
The last couple of days I have been busy with cleaning and rearranging Furniture and  getting rid of a lot of stuff. The Neighbors next door got a Lounger a sewing machine from us , which really helped them . Then I did all my floors and tomorrow I will use my
" Shark "  steamer and do the rest of the tiles . We are still trying to straighten out the last room in the house , since we been using it like a Storage ( shame on us ) because we been still in " remodeling " mode . But the Living-room looks good now ! There is still so much more work to do and since we are doing most of it by ourselves . The Porch is all cleaned up and I have already bought Top soil for my Garden ! ( I need my Garden that keeps my sane ) The weather has changed again and it was bitter cold today and very windy . We never have much wind !
My Office is finally cleaned out and I am buying a new Carpet for the middle of it. I dusted everything and it is starting to look like a Office !
The Flat screen is finally on the Wall too and I really like our new Dressers .
My Hep C is making me very tired and I really have to push myself to get going .


Liane is starting the new Medication this month and I am so pulling for her ! She is strong like me ; she has a great chance of finding a cure ! You are in my prayers Liane ; every night . And I will be there for her , sometimes it just feels good to be able to talk to someone that has the same Decease ! How do you explain this to anyone that doesn't know what it is ? You can't ! Every day is different and when I really feel bad I stay in bed ! But I sure love my good days . Well, time to go to bed :)

Stress kills

I been sitting here tonight and I am just shaking my Head  ! Weldon was really weird today . He dropped everything he touched >>> guess the RLS is getting worse ! And he was so absent minded today , like he was not in his body ... I had to repeat everything and he got really aggravated with himself and the more I said " Honey don't worry about it " the more he felt " lectured " . I was so stressed today and I just wanted to have some peace and quiet . So not happening ! He is so worried now about " becoming a burden " I laughed at him and said
" Becoming ? You been a Burden for 27 years " he laughed and said " When it gets to bad ; just put me in a old Soldiers home " I said " That wouldn't be any fun , I want to wheel you  around in a Wheel chair in Diapers and bring you to the Casino " He laughed and so did I but I would never bring him in a Soldiers Home !  Over my dead Body !
We will find out what makes him feel so weird . And tomorrow night I will be alone with my 2 Poodles and a Bubble bath !
So tired today !

Got my new Furniture

Love my New Furniture ! Love seat is awesome ! Has 2 recliners :) And finally hubby has a big enough chair for him and the 2 poodles ! Yeah ... life is good ! Bought 2 new Dressers and giving my old ones to my niece . The Sofa went to Chad and the old chair is going to Pat . So we are recycling : which is important to me !
Weldon has a Appointment on the 7th . He has to do the sleep study , then on the 15th he has to go in for a Pulmonary Test ! After all that being done then the waiting begins again

My Hep has really been hitting me lately : ( I can hardly stay awake for a long time ! But what can I say : " I enjoy my good days "
Sunday I went to the Veterans club to help out at the Parade ! We sold food and the proceeds went to help the Veterans !

Lung specialist

We seen the Dr. today and he looked at the Scan results and this is what he said ! " There are 3 spots on his lung , since he also has Sleep Apnea ;  when he stops breathing @ Night he is making his Lungs and Heart work harder . He has scar tissue around the Lung and they scheduled him for a Pulmonary Test tomorrow and blood tests . He also wants him to go back 2 the sleep study before we do anything else ! No doubt they will be freaking out when they watch him sleep !
Last night he kept taken his left Hand and tried to move something in I gently put his Hands down when he said " I am moving the Clouds " and he was still sleeping !

So needless to say it made me worry a bit :( Because he has been talking a lot about his mom and his sister that passed and then about the daughter that he lost ( we all loved her but HE was her Daddy and she was such a Daddies Girl .. It makes me uneasy because  he is such a positive Person and for him to bring all that up ... is just not like him .
He just has to be ok ! He just has to be ! Dr. said to keep an eye on him at night ....
The Video Camera is already set 4 tonight LOL

God will get us trough this and I believe !

Now here is something new

Four-Drug Therapy Wiped Out Hepatitis C Virus in Most Cases

 

By Gene Emery

NEW YORK (Reuters Health) Jan 18 - Combining the experimental oral drugs asunaprevir and daclatasvir with the established treatment of peginterferon alfa-2a and ribavirin eliminated all traces of hepatitis C virus (HCV) in the blood of every volunteer, even after ribavirin-peginterferon alfa-2a treatment had already failed, in small phase II study released online today by the New England Journal of Medicine.
The ten patients treated with all four drugs all had undetectable viral levels 12 weeks after treatment stopped, and nine still had undetectable levels after 24 and 48 weeks.
Another 11 patients received only asunaprevir and daclatasvir, and four of them had a sustained virologic response at 12 and 24 weeks after treatment.
"This is a watershed moment in the annals of HCV therapy because it shows that a sustained virologic response can be achieved without interferon," Dr. Raymond T. Chung of Massachusetts General Hospital wrote in an editorial in the January 19 issue.
Dr. Anna Lok of the University of Michigan and chief author of the study told Reuters Health that the cure rate for the peginterferon/ribavirin regime is low. "It's only 36%. But considering that these are difficult patients to treat, 36% is not too bad," she said.
All 21 patients in the current study had genotype 1 HCV, the most common in the U.S., and all had failed to respond to peginterferon plus ribavirin (i.e., they had not had at least a 2 log10 decline in HCV RNA after at least 12 weeks of treatment).
The response was far better when the four drugs were used. By the end of treatment, at week 24, all 10 patients in that group had undetectable levels of HVC RNA. Forty-eight weeks after the end of therapy, only one had any trace of the virus, and the amount was too small to quantify, according to the researchers.
About 4.1 million people in the United States and 180 million worldwide are infected by hepatitis C, with its associated risk of cirrhosis and liver cancer.
In the randomized phase II study, where patients knew what treatment they were getting, everyone received 600 mg of asunaprevir twice daily and 60 mg of daclatasvir once daily for 24 weeks. Both are made by Bristol-Myers Squibb, which paid for the trial.
Ten of the 21 also got 180 mcg of Pegasys brand peginterferon alfa-2a each week and Copegus brand ribavirin, where the daily dose was 1,000 mg for those weighing less than 75kg and 1,200 mg for those weighing more. Both are Roche products.
After 24 weeks of therapy, all 10 patients getting the four-drug regimen and five of the 11 patients receiving the non-interferon regimen had no trace of virus in their blood.
The six patients in the non-interferon group who had viral breakthrough during the treatment period all had HCV genotype 1a. Another patient in that group had viral recurrence after treatment ended.
By 24 weeks after treatment ended, the virus had returned in one of the 10 getting all four drugs. But that one person was retested 13 days after recurrence and levels of HCV RNA were undetectable, a phenomenon that was seen in other patients, said Dr. Lok. "Because it was not persistent, we believe 100% actually maintained virus clearance all the way to week 48."
"To be able to get to 90% or 100% is very remarkable," she said. "On the other hand, we all know that a lot of patients can't handle interferon and ribavirin because of the side effects. What we hear from the patients is that they hate interferon. They prefer not to get treatment. Everyone is looking for when can we have an interferon-free regimen."
In the new study, the side effects were similar in the two experimental groups. The three most common were diarrhea, fatigue and headache, reported by 45% to 73% of patients. Six patients had transient elevations of alanine aminotransferase to more than 3 times the upper limit of normal. Side effect rates were complicated by the fact six of the 11 volunteers randomized to receive only daclatasvir and asunaprevir received rescue therapy with interferon and ribavirin after a viral breakthrough.
None of the 21 dropped out because of the side effects.
Dr. Lok said 48 weeks of peginterferon and ribavirin usually costs about $40,000. Adding a protease inhibitor as a third drug costs another $50,000, and new biologicals often go for a comparable amount.
The eventual price of the experimental drugs is not known, assuming they are approved.
Thus, a four-drug regimen would add to the cost, Dr. Lok said, but "if this pans out, it's only 24 weeks of treatment. And if you get a cure once and for all, you don't have to worry about managing the complications of cirrhosis, liver transplant, liver cancer down the road."
SOURCE: http://bit.ly/A5JnBy
N Engl J Med 2012; 366:216-224.

Did I almost die or was I already dead ?

It has been hectic the last couple of days . Hubby is still losing his voice and also has trouble breathing ! This waiting is driving me nuts !  Appointment on the 25th . Until then there is nothing we can do !
Well, I am doing really good now and even started cooking again ! The last 6 month where not the best ! But I also learned a lot by being so sick !
It might sounds strange to people but I really believe that August 29th 2011 I was close to death when my Body was trying to fight this damn decease ! I haven't shared this with many people yet , because I had to work that out in my head , myself . I felt like I was flowing in the air and I saw my Husband  and our sons sitting by my Bed , crying . I remember I was trying to comfort them , but I couldn't . I was wondering why they could not see me ! My Husband was sitting down and had his Head down and our oldest son tried to calm him down . I have never seen my Husband cry like that , he seemed broken ! But I wanted to walk to that " Light " because I was so weak ... I saw my Father who died in 1980 and he shook his head  " It is not your time " he said and my Grandmother was by the light and smiled at me " You are a grown woman now and you must fight 4 your life " Right after she said that , I concentrated on getting  " back " But I looked at both of them again and felt sad . My Dad waved and said I will be fine . That Night my Fever over 104. was finally falling ....
When I became somewhat aware of my surroundings , my Husband sat by my Bed and his head was hanging down and he cried , while our sons tried to comfort him . I reached for him and he was kissing me on the forehead : " You are back ? he asked and I said : I was told to come back " but he had no glue where I had been ! And I was not ready to let anyone know yet ! But now I have to talk about it because I am at peace with this Episode
I will do some more research on Hepatitis in the next couple of weeks because I have to spread the Info to my fellow Hepper's  . I hope you are all well and if you need any Info about Hepatitis , just let me know ! Night night ....

Appointment is not until 25th !

There is nothing worse then waiting ! Today is Tuesday and that Specialist finally called and scheduled a Appointment ( for the 25th ) Damn... And we have to pick up the Ct Scan result and X ray from the Image Place .
I guess I will have to watch him suffer until then :  because the slightest exertion  and he is short of breath . He is very concerned about it and so am I .....
I just don't like waiting!
I did not do anything today ! Yesterday I washed clothe and vacuumed and dusted ! Yeah , I am trying to do a Project everyday . Yesterday I trimmed my Lime Tree and since it is a Male Lime tree who has Thorns instead of fruit ; I am all scratched up from the Tree . I fight this tree every Year but I will not let it win > LOL The weather was nice and I worked in my Yard for about 1 hour . This weekend we get cold weather again and I have to bring all my plants inside again . Drag them in drag them out ! The Temperature has already fallen .... Finally  ...
We had a lot of wind yesterday and that don't happen to often here .
Well , got some good news from Kathy yesterday : The judge put a Restraining order on Ritchie's Ex  wife ( Tramp ) since M is staying with them . I am so proud of Kathy and Richard for fighting for that girl . I know what it is like to raise children that have a lot of Baggage . It won't be easy but I have no doubt that Kathy can handle it !
Saying my prayers and going 2 bed >

Another Weekend waiting ....

We both had a bad night ! Could not sleep for the life of me :) Finally went to Bed at 7AM and slept til ' 2PM . Wow , never realized how hard it is sometimes to go to sleep . I really tried everything , finally took a sleeping pill and went to bed .
When I got up I worked in my Yard for 2 Hours ; it was such a beautiful day . We where in the 70tis and it just felt so nice . Got a lot done ; planted some starter plants 4 my new Project . I am starting a couple of plants and when everything works as planned I will start making Bird houses and when I have made lots of them I will sell them for my Soldiers . Would be cool to see how much I can raise ... I am just one person but I can make a Soldier feel good with some goodies from home . Around  Christmas I been really thinking about our men and women in Afghanistan . This War must come to a end ! If you want to help go to Soldiersangels.org  there is so much you can do .
Really means a lot to me ... I guess because Weldon has been in the Military for so long  and my Dad was a POW in WW2 for 4 Years . The Military has always been part of my life .

It is 2 AM now and I am fixing me a Mid night snack and then go to bed .

Medicare stinks ...

We finally got everything lined up with the Doctors : our Primary Dr. faxed the Paperwork to the Specialist . Now all we have to do is: WAIT AGAIN  Yuk ..... And in the mean time I am fighting  " Lab Corp "about my weekly Blood tests ! Medicare has denied it and said that it was NOT necessary ! My Doctor was so mad when I called him and promised that they will straighten it all out  and how dare they make a statement like that . Cool Doctor and so nice and sweet . Just got 2 love him ... I trust him with my life ! 


We went out today , did some gambling and ate some good Food :) We stayed 4 Hours and I was surprised that we lasted that long . LOL thank God that the Casino had good ventilation and Hubby didn't seem 2 have trouble with his Breathing . I just hope that the Specialist calls soon 2 set the appointment up . 3:30 AM .. I am going 2 Bed :) 

Have 2 go 2 specialist with Hubby

So , we are now waiting 2 get a Appointment 4 Hubby . A Lung Specialist will look at him now . I am calling tomorrow 2 see if we can't get him in faster ! He has been feeling a little better but I am worried about him ! I have never seen him so out of breath ! Yesterday he called a old Friend of his and told him that he is not in good shape right now ; and that is why he hasn't been in touch .... He NEVER admits that he is not doing good . So now I can't wait 2 get him to this specialist .
My Hepatitis Blog is going a little off  Track ... Sorry ; for now I have to help my Honey .