Blood test

I did go for a Blood test this afternoon so I will have one Test to compare with the old ones when I see Dr. Albright on the 5th .
On the 3rd of October I have my next appointment with my Dentist . It will be one busy month for me . We have many Birthdays in the Family this month and I have to write Cards and send some Packages also.
I have done absolutely nothing at the house Weldon is helping so much by keeping the kitchen clean  and going to the store .
I took a long Oatmeal Bath and put Lotion on my Body . By the time I walked in the Bedroom the lotion already soaked into my skin and it felt dry again . Will this damn Rash ever
leave ? 

Went to see the Dentist

Sometimes you just have to laugh at life because shit just happens !
I had a terrible night last night , between my burning back and front of my Body and the tooth hurting the abscess  getting bigger, I NEEDED TO GO TO THE DENTIST , When I looked in the mirror my right eye ( that never really healed from the rash yet ) was swollen and so was my right side of my face .
I just got up at 1 PM ! Couldn't sleep with all that pain , My  Husband called the Dentist and Lucky me , was able to fit me in for 2:30 today !!!! Yeah.....
After he looked at my abscess and taking x rays  and was honest to me .  We have to take my implants  out on top .  Under my Implants I have stumps that need be extracted and I have 2 of my own teeth that need to be pulled . The Good News is : I will be out for this Surgery and they will put my Dentures in the same day . He said that there will be lots of pain envolved  after the procedure . But I guess the Man upstairs said " IT IS TIME TO TAKE CARE OF YOURSELF "
That's why I am laughing at life " First my Body peels all over  and I get all new skin . now I am getting new teeth " I will be a whole new me !
You have to stay positive and laugh at yourself and you will be surprised how much you can endure , when you have to : )
I feel optimistic about the future and I know I will survive .

Tooth ache w/ Abcess

So , I wake up with a abscess in my mouth and a big tooth ache ; and it is Sunday ! So all day I have been taking care of my skin and my teeth . Tomorrow Weldon will call the Dentist and try to get me in . I am not looking forward to it but my tooth is hurting !!!!
Also , I have been cold for the last couple of days again and it is 100 Degrees outside . Well I am laying in bed with big Winter PJ's and a shirt and a Jacket , and I still feel a Chill . It seems like one of those side affects .
I am so sick and tired of laying  in Bed  feeling like shit ...

This is our handsome Nephew and his beautiful Wife !

No Appetite !

I really have trouble eating right now . I went from pigging out on Pizza ( when I first got home ) 2 eating cans of fruit and Power shakes ! I know I need to eat more but my appetite sucks right now . But my Hubby pushed me today and I did eat a Egg Sandwich ( cut of the ends )
Sometimes I feel like if life deals you crap ; make a craparoni Sandwich ( LOL ) 
 
Thank you Mimi and Liane for reading my Blog ; it helps to know that people care . Liane please try the treatment anyway ! From what I heard from my Doctor , I WAS THE WORST CASE SO FAR , So don't give up and start your Treatment and call me anytime day or night ... I will be there for you .

Pictures of my Battle wounds : )

Well, it is hard for me to do anything with my Hands now . The skin is peeling and it also rips and start to bleed . My Feet are doing the same thing even on the Bottom ,  It looks so weird and I  would laugh it it wouldn't hurt so much ....
I will post some pictures !

 my right foot

My Feet are hurting !

I am off the Ribasphere

My Doctor took me off the Ribasphere and told me to just stay with the weekly shot of Pegasus . He said that maybe I should just wait and see . He said that I was a true Warrior and he is proud of me for being strong , He said that 4 Doctors called from the Pharmaceutical Company he said I am a Celebrity . They are asking for a bunch of paperwork to be filled out . I am not a Celebrity I am just a Hepatitis Patient that is looking for a cure .
I will see him again on the 5th of October and I guess he will answer my Questions then .

Eat your Vegetables

He said that his wife had Cancer being 39 Years old . So I guess it is all a waiting game now and we will see what else we can do . 

104 Fever ... yuk

Fighting a Fever again  !  Been sleeping all day . Just tired and sick 2 my stomach . The Back is itching and the front is burning ! I just don't know anymore what to do . It is so uncomfortable . I will go to the Hospital if I can't brake the Fever

And I did this why ?

Today was one of those days !
I felt itchy and I was hurting . My Back burned and felt like it was bruised . I finally took a half of pain pill  and it helped some . My Dr. left a message that he wants 2 see me and since my Hubby has an Appointment with him Thursday I can come in . Wow , I surely have a lot on my list to ask him . Many Questions he has to answer for me .
I moped my floors today and cleaned the Bathrooms , then I put a load of clothe in the washer. I also went through some old papers and shredded some . I vacuumed and that was it I was wore out . I am glad that Hubby is so helpful .
Did I make the right Decision  when I went on this invicek . Will I stay negative after the 6 month ? And what kind of harm does the Interferon Pegasus do ?
Please remind me that this too shall pass...

Family cook out

Family is EVERYTHING 

Richard and Kathy are a true blessing and we are glad that they came , When you have Family around you are never alone . Kathy was such a big help to me and I was touched by her kindness and her love . 
Saturday , our oldest son his wife and daughter and  my Husbands Brother and my niece and her Boyfriend came over and they all went to our youngest sons house . Since my Immune system is so weak I did not want to ruin every bodies good time , so I stayed home  I cant really put on any clothe yet , so I took a nap and rested . Kathy came back early with Weldon and brought me Bratwurst and a steak and Potatoes , Then the guys had some bonding time and Kathy and me did our bonding too  . I hate that they are leaving in the morning .

More layers of skin

This rash is something else .... My Chest and Back is fire red and I know it will blister soon .
Sometimes it just itches so bad I have tears in my eyes . 3rd Degree burns from a Drug that slayed the dragon ! I guess I just have to get through this and hope for the best .
Kathy our Nephews wife has been so good to me . She cooked and cleaned and I was grateful for this blessing . I love her .. Our Nephew Richard ; married a great woman .

We finally had a Cold front and the weather is not as muggy .... Electricity went out yesterday for 3 Hours ! Damn was I getting irritated ...

Sick of being itchy and peeling

I thought that the worst is behind me , but now I see the Rash on my chest and Back ! Again ! I guess it has to do with more then one layer of skin ! This is not only aggravating but also very annoying . What is wrong with this picture ? I have called last Thursday to get my Pegasus shots and Ribaviren Pills. Pharmacy said that the Dr. has to authorize it . Called the Dr and just couldn't get any answers. in the week ( Friday ) I got a call from Holly ( Dr. Albright's  Nurse ) She said that the Dr. will authorize it Monday . Monday came and went and I didn't hear anything . Finally this Thursday I called the Dr.'s office and again they played this " Can u hold please " and then I waited for 30 Minutes before I got the receptionist . I told her that I needed to talk to medical staff but they said there was nobody there right now so I left a message with the receptionist . Finally The Nurse called back and insured me that I will get my Medicine on time . In the mean time I get a call from the Pharmaceutical Co. and they said that they did not have a authorization
yet. Boy was I pissed ! I got on that phone and called my Dr. again ! That actually pissed me off so bad that my rash started to flare up badly on my Hands and Arms . I could not get through ! That damn answering machine kept coming on and I was so annoyed . Then I was put on hold again and I finally asked for the Ext. of the Nurse and left her a message She called me back within an Hour and told me that the Dr. signed and she faxed it yesterday. But that was a lie since I talked to the Pharmaceutical Co and found out that they just now got it ! I am really upset with my Doctor because he should have gotten the messages . I WILL make a appointment with him tomorrow !

Still healing

I had a rough night ; just kept waking up .  Still realize my limitations and it is hard for me to just lay in bed . But I will be stronger soon and I just have to be patient . Hubby hired a young guy to put his Stationary bike together. James needed money so Weldon thought it would be a good Idea to help him . He did a good job and he is taking him out to eat . Tomorrow we hopefully get the damn Water heater installed . In the mean time I am glad we have a camper in front of the house and I take my showers there . Better then none at all
<< smile >>
I called Tina to tell her thank you for the messages she left me while I was sleeping .
Yesterday I didn't feel like writing because it was so depressing that all that 9-11 Stuff was on TV. I just couldn't watch it ... I have to concentrate on positive things .
Like healing and making plans for the Trip to Disney World . But it will be Christmas 2012 before we go . I want everything planned and booked by January .

Uncaring Nurses

I felt weak all day ! Weak and tired ! I didn't do much today but I cleaned some of the guest room up and washed clothe and folded them .
The Guy from Lowes finally showed up to measure the hot water heater. By Monday they will have it in . Rich and Kathy are coming Wednesday and we are all so excited . Husband finally reached his brother to have him come over Saturday when we plan a little get together with the Family . Our youngest Son is making some Steaks and we all just gonna enjoy each other .
After all nothing matters more then Family !
When I was in the Hospital I kept telling myself that this 2 shall pass but I was doubtful . It feels strange when you feel your Body shutting down and there is nothing you can do then pray . And praying I did ! My Body looked like it was just dying . I will share my Video with some of my Friends and my Family , but I have yet to listen to the sound . But I could not believe how bad and fragile I looked .
I also learned a lot about Health care and smaller government ! While I was in that Hospital I kept wondering why nobody would put any cream or sap on my wounds ! Everybody would just come in and say : Hi my Name is so and so and I am your nurse for today ..... I could not even talk to them . My Mind at this point was so fogy that I thought I ended up in the " One flew over the Coo cos Nest " Movie . After Hours of trying to figure out how to communicate , my brain signaled me that there where 3 groups of people coming in the room . People dressed in red scrubs , blue scrubs and people in green scrubs  There was a Black board on the wall where they wrote " Nurse "  " Head Nurse " and " Extenders " . It took me a while to realize the ones in red where nurses but not RN's blue was RN and they had the worst atitude . Some would come in the room and say nothing ;  with their name tags turned around ! Nobody really cared or showed any type of sympathy for me , the patient . They all worked like Robots , like they just tried to get their 8 Hours in . I have Never seen a more uncaring  group of health profetionals in my life . But when my Family came in ; there was a shift in frequence  of checking on me . If that is the smaller Government that the GOP is talking about then this country is going to hell !

My Skin is thin as paper

My skin is peeling and is healing up good . I always have my Mini Video Recorder with me and I did some Video while my Rash was getting so bad ... I am a freelance writer and I am always ready for a story . This time it was my own Story ! I am glad that I had the recorder with me because otherwise I would have no clue how bad it really was . Just watching the video without sound was very upsetting to me . Like I said it really was traumatic for me to come so close to death .

My skin is very thin around my wrists and elbows , The slightest scratch or bump makes my skin brake . I realize that I am still very weak but I will get better and I feel optimistic .  Every day I am setting myself small goals and when I accomplish them I am proud of myself. It is the little things in life that make me happy now ... My Family and my Friends are very important to me and they helped me through my bad days .

Just found out that our Nephew Rich and his wife Kathy are coming for a visit . They live in Tennessee and we don't see them often , so we are really glad they are coming .
Thank you God for getting me through these  rough days !

I look like a " Burn Victim "

On Monday the 29th of August 2011 , Hurricane Katrina's 6th Anniversary I had the worst night of my life ! I believe that I died that night . My Body looked like I had severe Radiation poisoning ... A Blood cancer specialist came in and made the remark that I might had " Steven Johnson Syndrome " .  My Husband was told that I might not make it through the night .
Tuesday 30th of August I finally got a phone call from  my Liver specialist at 7 AM . He told me that he was on his way . The next couple of days are still fogy . All I can say is this
" I am alive and I am convinced that I was saved by a higher Power . "

I can't really even write about it yet ... I have been home now for a week and every Hour is a triumph for me . I am healing up good , but my Immune system is still weak and my Platelets are still low . I am trying to get better and so far I can see a big difference from a week ago .

2 days and still no answers

How can you just get the best News in your life and suddenly everything changes in such a tremendous and traumatic way that even I can't piece the puzzle together yet ?
On Friday the 26th of August my Rash got a little worse but I had my Guard down because I was still in a daze about my Virus being ZERO . So I told myself to stay tough because it was just a small price to pay for this kind of Result . I kept taking my Oatmeal Bathes and took over the counter Anti Itch Medicine . My Husband kept spraying my Body with spray that cooled it down some but I was not a happy Camper.
Saturday I woke up with a headache on the left part of my Face , that made me feel like somebody was trying to push my eyeball out from the inside . I noticed that I was starting to get 2 strange spots on each of my thighs , that looked very different from my " regular rash " It looked darker and the texture felt rougher . That day I felt increasingly nauseated , irritable and anxious . I could not keep anything in my stomach that day but since I believed that I will just get " Over it "  I am the wife of a Soldier why was I being wimpy ? Shouldn't I just be tougher ?
Saturday evening I started to get a fever of 104.00 I was burning up and brought the fever down with fever reducers over the counter . It went back down to 100.00 and finally felt asleep .
Sunday the 28th of August I knew I had to go to the ER  as soon as I woke up in the morning . My Rash was all over my Body ; yes all over my Body ! There was not one inch of my Body without rash . My Husband drove me to the ER and by the time we got there I was really in distress . The pain increased and by the time I finally got admitted and we insisted  that my Liver Specialist will be notified  ; all I felt was this burning pain . My Husband left around Midnight and my nerves where on edge when I decided to go outside to smoke . When I walked around with my IV Stand , I tried to find a door and was told by a young woman dressed in  dark blue ( will get back 2 this Color later ) that I couldn't leave ! I looked at her and asked " Let me ask you something " Did I sign myself into a Hospital or a State Prison ? " She never answered me just gave me this evil look . I was not restricted in anyway by any doctor . I walked to the other side of the Hospital to get to a door and walked out . Alright , I admit that the graving of smoking made me want to go outside but as a American don't I have that right ? Who did I hurt ? But myself ...
When I get outside ; there is a man , also smoking and a Cop Car . The Man started a conversation and said that I looked like I planned the " Great Escape " I smiled and said all I want is to smoke a cigarette and that I have not had one in 12 hours . Made a joke about the old comercial  " I walk a Mile for my Camel Cigarette " Anyway , the Man told me that his son was in the ER and he didn't know what was wrong with him . I wished him luck he wished me luck and I went back into my room .
On Monday 29th of August ( 6th Anniversary of  Hurricane KATRINA )  there was still no sign of my Liver Specialist and my Husband called his Office to let him know what was going on he also called my regular Family Doctor since we been with him for over 20 Years and I trust both with my life . All day we waited and  my rash reached a new Grade ...
The 2 Spots on each of my thighs have gotten so dark and the top layer felt like Alligator Skin ! The Doctor that admitted me had stopped my Ribaviren and I was not happy about that  since I had 2 stay on this medicine in order to finish my treatment . But there was nothing I could do ! Later on that evening my Friend Theresa came by and it just made me feel so much better just to see her smiling face ! She looked like a Angel to me . Instinctively she took me for a walk just to get me out of that room for a while . We walked for a while and I told her that I was itching so bad on my back , she said I looked like I was sun burned  !  When she left my Husband came back for a couple of Hours .... It was hard for me to see my Husband so helpless because there was nothing he  could do for me . By the time my Husband went home and my Friend Theresa came back , she was shocked ! She said that I looked like someone put me on a Island and I had 3rd degree Burns all over my Body ! My Ears where now covered with these layers of burned skin and my Face and nose where showing signs of burned spots . The hardest part was " Nobody did anything to give me relief by putting anything on my skin " The Nurses acted like I was a Number ! When Theresa left that night I felt like someone poored Gasoline all over me and set my Body on Fire , the pain was that intense !