Happy New Years

Haven't been able to write much since Hubby has not been feeling good . He had a Cat scan and we are waiting on the results . The x rays showed that he has scarring on his Lungs ! We thought it was his heart when he couldn't catch his breath . For now they gave him a inhaler and I can't wait for Monday to find out what is wrong ! He has been a little energetic yesterday and even started on the Garage ; but today he lost his voice again and he has this Cough.... and it has me a little worried now . Well , we can't do anything until we know what's up .
With that said , I am wishing you all a wonderful and Happy New Year and stay safe .

I want peace on Earth

Presents are wrapped , House is almost clean and the Dinner is ordered ! Yup, I am lazy this year because just being together is more important this Year. We will have 2 Kids here on Christmas Eve ( 6 + 2 ) Avianna and James ( Peanut ) What is Christmas without Children ?
So , I will spend every Minute with my Family and not in the Kitchen !
I am feeling very tired lately and noticed that I get tired a lot more often now . I took Sandwiches and Santa stockings to all of our Doctors and they where so happy about it . That what Christmas is all about ! Giving ! Not taking  ... I love Christmas

Good Weekend

Finally I am making the last 2 packages and writing some checks out for Brandon and Brianna for Christmas ( Stacie and Dan's Kids ) Brandon is really the last LINDEN that can keep the Family going ! And he is taken that very serious . << great kids >>
Saturday 24th we have a Christmas Dinner at our  House and I am getting excited about it .
I have everything decorated and I must say that I have done a lot in the past couple of days Yesterday my my niece came over ( Darling ) and we had a really nice Visit : ) The Kids where really good and little James ( Peanut ) was a trip .

Since I had this  Encounter at the Hospital : I live different now  . I used to be so worried about having a clean house ; rather then sitting down sometimes and mingle with the Family . Now I don't worry about the Dishes so much because I can clean after they leave . Duh ... It is really weird how deeply I appreciate that I have been saved  .
I have Hep C and I am so grateful that I am still on Earth ...

The weather is mild today

Almost done with all the Christmas shipping . 2 more Packages and a few more things to do 4 Christmas . The weather was beautiful today : in the 60 'tis and it was so nice .
I cleaned house and decorated the window in the kitchen ( last thing that needed 2 be decorated ) Now I am starting the count down for this Year 2 end ! This was not a good year 4 me but  I am better now and getting stronger every day ! Sometimes you just have to carry your load : )
Miss my Grand Kids ...

Winter has come : (

2 days ago we had the A/C on and right now I can't get warm enough ! Yes , Winter has arrived : )
I made a Package for some of my Friends and hope that  they will enjoy it : )
( I know they will )  Isn't Christmas the best time of the whole year ???
I will host the Christmas Dinner this Year and I am excited about it . I am not sure yet what we will have but in a couple of days I will figure something out . 11 People maybe more : )
Just the way I USED 2 like it << smile >>
Well , I better get the rest of my Christmas Cards done . Marc will be surprised when he get's  his gift .  And so will some other ones ... Enough for today .

This is " Liberty one eye "

Mailed another Package out !

The Weather is really crazy here ; yesterday we had the AC on and today it's the heater ..
Go figure ! If you live around here  ,  you will get used to it but  least we don't live up North . They catching hell right now : (
I managed to get another Package done and mailed out . Kathy you will get a Package soon
: )
Just a little something to show some love ... I just love to wrap Gifts and put packages together . This is is my favorite time of the Year .
Tonight we will get frost ! I have to cover my plants that are outside on the patio and put some sheets over my other ones .
I still have to write Christmas Cards , but the ones for Germany are done !
I will add some pictures 4 ya' all . As soon as I can ...

Hepatitis and my feelings

"Hepatitis" is a Latin word meaning "inflamed liver." Liver inflammation is often caused by a virus. While many viruses can affect the liver as they spread throughout the body (for example, the infectious mononucleosis virus), the hepatitis viruses infect the liver as their primary target. There are 7 well-characterized types of viral hepatitis, but only 3 are common: A, B, and C. Hepatitis C is the most common chronic blood-borne infection in the United States .
It then brakes down into Genotypes like 1 a 2 a 3 a or 1b 2a > I am Genotype 1a and I am considered a None responder . I came to the conclusion that no matter what : I will not try another Treatment . It just takes to much out of me .

I am finally feeling better now and I took a good look at my life . I want to enjoy the rest of my life , not lay in Bed looking like I am dying ! Nobody knows when they die and either do I . So why would I try another Treatment ? When the side effects are worse then the disease ; your quality of life is no longer livable
I don't want anyone remember me sick and looking like hell . I want them to remember me as the fun and loving person that I am . I have so much love to give and I want to go back to basics .  Family is my soul Interest right now .
I have finally done 2 Packages ! After doing the 70 Bags with Goodies that we dropped off  at our Doctors Offices  ; I am running late on my Christmas Cards and Packages . So today I went and mailed out a package to Germany ! 8 Pounds $ 60.00 ! Wow it has been a while since I mailed anything over there .
Then I had a pleasant surprise when my son left me a message on FB . I am sending him  a card tomorrow with a few $ in it : ) Almost hard to believe that he is almost 38 Years old and he has been married since 2002 . No Kids yet ; they just can't afford it right now !
We went to the Wedding in 2002 and I knew then that it would be a cold day in hell before I would go through all the stress that comes with flying overseas . When I was younger it was fun to fly but now ... yuk...

Christmas is almost here

Well, tomorrow never came so we finally put the Decorations up today : ) I will upload a picture later << tomorrow >>. It looks good and maybe I will take a Video of it : )
So, all day I felt like crap today but we were waiting for the Nissan dealer to call us . The Truck made  some kind of squeaking sound so we took our Titan to the Dealer .
I was cranky because I didn't feel good but we still got everything done what was not done .
Now I am going 2 Bed , and watch TV ... No wonder I can't sleep ... duh ...

I am in Christmas Mode

Well , I  went shopping for a few things  with Weldon ! Needless 2 say we just had 2 stop at Lowes and pick a great sign out for our Lawn . It doesn't say Happy Holidays It said
" Merry Christmas " and we both liked it a lot . I prized some Plants ; outrages ! So , I had this bright Idea to plant a lot of starter plants for next year and the sale them . It is not the money , but more for fun . I will charge 1 $ for one plant unless I paint the Flower Pot and decorate it , then I will charge 2 $ . My Husband thinks I have lost my mind since it is very hot in the summer time . But I told him I will only sale in Mardi Gras Season ! He still thinks I am crazy ! But I really enjoy plants and maybe I could trade with somebody so I can get different Plants . Heck : I have plants in my Yard that could really use a trim . So tomorrow I will take clippings and start to root them . The I have to decorate some containers and make it look nice . I still have so much craft stuff in my Closets !!!! Every darn Closet is full and I swear I will down size this coming Year ( actually I started with his stuff heheheh.. ) I have already some stuff in a bag for the Veterans and by January I should have at least 2 Closets empty .
I am totally in Christmas Mode since Al send me that great Video decorating her house . So she inspired me . I got all the decorations out of the Attic and I will give a lot of stuff to my Daughter in Law . I just don't put that much out anymore . But we do have a wonderful Collection of Nut crackers ( Several from Germany 0 and very unique ) And I will put them out and a Santa Clause and some little stuff ..... and we will get that sign up
" Merry Christmas " It is huge ! Well, yesterday I drank some Pennsylvania Dutch
Eggnog .   But I don't do that to often because of my Liver . But I bought some anyway .
 I have played enough Games on Facebook today and will chill now . Tomorrow I must write Christmas Cards and make Packages and mail one out that is already done . Ho ho ho

Invicek put me trough hell and back

I never thought that I could look  like that , after just finding out that my Treatment for Hep C was working and my Virus was none detectable !
I don't want to discourage people with this Video ; but I do want my Fellow Heppers to see what to look for if they do decide to go on the new Treatment  !
I did not want do give up and that is why I started Treatment again ( done 3 round of Treatments years ago ) One time I did Interferon for 1 Year and I swore then I would never ever again go on any Treatment . But , this drug is working ! It really is ; I was just one of the few % that could not handle it . So please if you want to try the Treatment , do it . I have always been a None Responder and this was the first time that something really happened , I was Virus free for 4 days !
Stay positive ! And never ever give up ! Sometimes the cure is worse then the Decease !

What Invicek did 2 me

Today I feel more relaxed then ever ! I am so grateful that I feel so much better.
Yesterday was Thanksgiving and I was not stressed out at all . We had Dinner the lazy way ! I made a Ham and we picked up a turkey from Rouses ( Grocery Store ) it came with 4 side dishes and 2 Pies , It was great and I had so much much . I enjoyed to spend time with my Great Niece Avianna and my great nephew little James ( Peanut ) My Niece and her Fiance with the 2 kids , our youngest son and my Brother in Law . We laughed a lot and everybody was just happy to be together. After Dinner , Weldon surprised his Brother Pat with a New 32 ' flat screen TV ! His Birthday was a couple of days ago and we decided to make it a Birthday Christmas Gift . LOL  . I haven't hosted a Thanksgiving in the last couple of Years and really started to enjoy that again , but when I was on the Treatment I had hardly any fun !
I will start to write a little more about Hep C in the next couple of days . I also want to put my Video on here to show People what Medicine can do to you sometimes .
And I will post it right now ! Since I just figured out how 2 do it LOL

Please keep in mind that I had trouble breathing and I was on Morphine . I will post another Video that I made the next Day . Just 5 days before I was told I was Virus free . It sure didn't last long ... But I am alive

I have new teeth !

It has been a while since I wrote , so I am trying to update this Journey . On November 1st I got 12 Teeth pulled ! Yes , I finally went to the dentist and I am glad I did . My mouth still hurts very much but I already have my new Teeth . But until the swelling goes down I can not really eat a lot ! I feel like Grandma got run over by a Reindeer ....
Then I send Beth a check 4 her Birthday and actually send the check out twice ! And I send one to my niece that came back today ! I forgot to put the House number on the Envelope . Yeah, it's hell getting old : 0
We donated $ 200 to the DAV yesterday and trying to get my Brother in Law's House fixed tomorrow we are taking a ride to his house and see if there is any progress .
Well, I am making this short. I have seen Dr. Albright and he did not recognize me, with my new Hat and new Teeth . I feel blessed to have good Doctors , I brought him some Patriotic Stuff for Veterans Day : )

Chillen on the Patio

So now I been cleaning the house even cooked tonight ! Porch looks good , Weldon put a screen around it , you know the ones on TV : Mosquito Net with Magnets !
Well , since I was glad that he finally did that for me and it feels wonderful outside ! This morning I rearranged Furniture gave our 2 Poodles a nice Haircut . Sarge is easy to cut but Liberty fights me all the way . I am so grateful for feeling almost like myself again ! I don't like when I can not do for myself !
Weldon went to Chad's ; Movie Night ! I played some games and now I am packing it in !

Husband got scammed

Weldon received a letter yesterday , from a Company ( Carsafe) that claimed that our extended Warranty on my Saturn was running out . Needless to say , he called them and extended the Warranty . I thought that he was on the phone with ALLSTATE so I didn't pay much attention . So then he tells me today that he has a weird feeling about the Call . I found out that the call was to the Carsafe Company not ALLSTATE . I went on the net and found out that this company is a big scam . Weldon was beside himself and called the Credit card company and told them about it . We have to go to the Bank tomorrow and change all our Accounts and get a new Credit card . He beat himself up pretty much ; I told him not to worry and we will fix it . So I found 3 Articles on line ; about this " Company " and printed them out so we can bring them to the bank . I am so upset over that scam .

I had Energy today

Cleaned House today , changed Sheets and felt pretty energetic 4 a change . Did some Laundry and then wasted 5 Hours on  Facebook games : )
I forgot what it feels like to have Energy ! So truly grateful ... 
Weldon been gone most of the day , he had to see his VA Rep and naturally he had 2 go shopping again ! He has been really working hard on the Porch trying to get it screened in .
( Actually he has been promising me since 1992 ) : )
It is weird but I really believe that my illness put Weldon back on track . He has not been himself since Rhonda died and I did entirely 2 much 4 him ... He is finally getting back 2 the Weldon I know and love ... So I learned that every bad situation also has its good points . Sometime Disappointment also brings Triumph in a weird way .
It was really strange when I couldn't do anything for myself . Never ever did I spend so much time in Bed . That is so not me ....

My feet and Hands are the last thing that is peeling

Life goes on !

Well, I picked myself up by the shoe string's  and I am getting stronger every day . I am grateful that I had the chance to try the new medicine , but I think that I am just going to wait for something better to come out . This Rash really took a toll on me and it surely takes a while to get back to normal , whatever normal is ...
I am over the shock now and glad that I am doing so much better ! I am eating better and food tastes almost like food again ! Would really like to go on a Trip ! Just to get out of here for a while ! My Immune system is still weak but my skin feels so much better : )
November first I get my new Teeth and I will be out for that procedure  . I will be hurting for a couple of days but that's ok.... I know what real pain feels like : )

Treatment is over 4 me

I am very disappointed ; my Virus is back ! I been crying 4 one day and just took some time off from Facebook . Just been depressed for a while ! Dr. said to wait for the next medication to come out . He was disappointed 2 . But what can you do ?
So now I am trying to get myself back 2 normal ( Platelets and RWC need to get back to normal . My Immune system is low and I am trying to find joy in life again.
I am not giving up ; I am just waiting for something else to come out for Hep C.

It is getting a little easier

Sometimes we don't realize how lucky we really are ! Having Family and Friends that help you trough your hard times is prices less . When you are down and out you see who your true friends are !  I am glad that I have Liane ; she has helped me by just listening . Theresa has been with me all the way : ) And I am so grateful for the love and understanding that I am getting from my Family .
I am seeing my Doctor tomorrow and will find out whats up ! I hope my Virus is not going up again !

My Feet are still hurting and so is my body but I can handle it ...

Would u go 2 a Dentist with the Name Dragon ? I would...

Well, I went to my Dentist Appointment and have 2 see him again next Monday !
I will put my Video together from the Hospital on this Blog . This way you can all see how bad it really was .  I just have not had the guts to listen to it yet . I was pretty out of it and I was in so much pain  then .
I have some more new pictures that I will put on here as soon as I can . ( still sleep a lot ) and I tire easy . But I am so proud of myself for going to the Dentist

More Lotion and rest

I am so sick and tired of constantly putting Lotion on my Body ( 3 times a day ) . The skin on my hand and feet is still hurting so much ... but the pain is no longer intolerable  . But every grease on my skin is splitting , which hurts ... But I believe that I will be fine in a couple of weeks . My private parts are still fire red and so is my Chest .
May Hair has been falling out and I now wear Bandannas  to hide the bold spots >> heheh >>>
But I also bought me some cool hats  ; and I have to think of a new style ! I never had short hair in the last 20 Years so I have to re - indvend  myself . I am really having Brain Fog a lot and I am always tired ...  Talked to my sister in Germany and it is hard to open up 2 her. She was kind of busy so I didn't speak to her long .
Then I called a Friend of mine and enjoyed a good conversation .
On the 3rd I am going back 2 the Dentist ... yuk... But I don't have a choice .

Blood test

I did go for a Blood test this afternoon so I will have one Test to compare with the old ones when I see Dr. Albright on the 5th .
On the 3rd of October I have my next appointment with my Dentist . It will be one busy month for me . We have many Birthdays in the Family this month and I have to write Cards and send some Packages also.
I have done absolutely nothing at the house Weldon is helping so much by keeping the kitchen clean  and going to the store .
I took a long Oatmeal Bath and put Lotion on my Body . By the time I walked in the Bedroom the lotion already soaked into my skin and it felt dry again . Will this damn Rash ever
leave ? 

Went to see the Dentist

Sometimes you just have to laugh at life because shit just happens !
I had a terrible night last night , between my burning back and front of my Body and the tooth hurting the abscess  getting bigger, I NEEDED TO GO TO THE DENTIST , When I looked in the mirror my right eye ( that never really healed from the rash yet ) was swollen and so was my right side of my face .
I just got up at 1 PM ! Couldn't sleep with all that pain , My  Husband called the Dentist and Lucky me , was able to fit me in for 2:30 today !!!! Yeah.....
After he looked at my abscess and taking x rays  and was honest to me .  We have to take my implants  out on top .  Under my Implants I have stumps that need be extracted and I have 2 of my own teeth that need to be pulled . The Good News is : I will be out for this Surgery and they will put my Dentures in the same day . He said that there will be lots of pain envolved  after the procedure . But I guess the Man upstairs said " IT IS TIME TO TAKE CARE OF YOURSELF "
That's why I am laughing at life " First my Body peels all over  and I get all new skin . now I am getting new teeth " I will be a whole new me !
You have to stay positive and laugh at yourself and you will be surprised how much you can endure , when you have to : )
I feel optimistic about the future and I know I will survive .

Tooth ache w/ Abcess

So , I wake up with a abscess in my mouth and a big tooth ache ; and it is Sunday ! So all day I have been taking care of my skin and my teeth . Tomorrow Weldon will call the Dentist and try to get me in . I am not looking forward to it but my tooth is hurting !!!!
Also , I have been cold for the last couple of days again and it is 100 Degrees outside . Well I am laying in bed with big Winter PJ's and a shirt and a Jacket , and I still feel a Chill . It seems like one of those side affects .
I am so sick and tired of laying  in Bed  feeling like shit ...

This is our handsome Nephew and his beautiful Wife !

No Appetite !

I really have trouble eating right now . I went from pigging out on Pizza ( when I first got home ) 2 eating cans of fruit and Power shakes ! I know I need to eat more but my appetite sucks right now . But my Hubby pushed me today and I did eat a Egg Sandwich ( cut of the ends )
Sometimes I feel like if life deals you crap ; make a craparoni Sandwich ( LOL ) 
 
Thank you Mimi and Liane for reading my Blog ; it helps to know that people care . Liane please try the treatment anyway ! From what I heard from my Doctor , I WAS THE WORST CASE SO FAR , So don't give up and start your Treatment and call me anytime day or night ... I will be there for you .

Pictures of my Battle wounds : )

Well, it is hard for me to do anything with my Hands now . The skin is peeling and it also rips and start to bleed . My Feet are doing the same thing even on the Bottom ,  It looks so weird and I  would laugh it it wouldn't hurt so much ....
I will post some pictures !

 my right foot

My Feet are hurting !

I am off the Ribasphere

My Doctor took me off the Ribasphere and told me to just stay with the weekly shot of Pegasus . He said that maybe I should just wait and see . He said that I was a true Warrior and he is proud of me for being strong , He said that 4 Doctors called from the Pharmaceutical Company he said I am a Celebrity . They are asking for a bunch of paperwork to be filled out . I am not a Celebrity I am just a Hepatitis Patient that is looking for a cure .
I will see him again on the 5th of October and I guess he will answer my Questions then .

Eat your Vegetables

He said that his wife had Cancer being 39 Years old . So I guess it is all a waiting game now and we will see what else we can do . 

104 Fever ... yuk

Fighting a Fever again  !  Been sleeping all day . Just tired and sick 2 my stomach . The Back is itching and the front is burning ! I just don't know anymore what to do . It is so uncomfortable . I will go to the Hospital if I can't brake the Fever

And I did this why ?

Today was one of those days !
I felt itchy and I was hurting . My Back burned and felt like it was bruised . I finally took a half of pain pill  and it helped some . My Dr. left a message that he wants 2 see me and since my Hubby has an Appointment with him Thursday I can come in . Wow , I surely have a lot on my list to ask him . Many Questions he has to answer for me .
I moped my floors today and cleaned the Bathrooms , then I put a load of clothe in the washer. I also went through some old papers and shredded some . I vacuumed and that was it I was wore out . I am glad that Hubby is so helpful .
Did I make the right Decision  when I went on this invicek . Will I stay negative after the 6 month ? And what kind of harm does the Interferon Pegasus do ?
Please remind me that this too shall pass...

Family cook out

Family is EVERYTHING 

Richard and Kathy are a true blessing and we are glad that they came , When you have Family around you are never alone . Kathy was such a big help to me and I was touched by her kindness and her love . 
Saturday , our oldest son his wife and daughter and  my Husbands Brother and my niece and her Boyfriend came over and they all went to our youngest sons house . Since my Immune system is so weak I did not want to ruin every bodies good time , so I stayed home  I cant really put on any clothe yet , so I took a nap and rested . Kathy came back early with Weldon and brought me Bratwurst and a steak and Potatoes , Then the guys had some bonding time and Kathy and me did our bonding too  . I hate that they are leaving in the morning .

More layers of skin

This rash is something else .... My Chest and Back is fire red and I know it will blister soon .
Sometimes it just itches so bad I have tears in my eyes . 3rd Degree burns from a Drug that slayed the dragon ! I guess I just have to get through this and hope for the best .
Kathy our Nephews wife has been so good to me . She cooked and cleaned and I was grateful for this blessing . I love her .. Our Nephew Richard ; married a great woman .

We finally had a Cold front and the weather is not as muggy .... Electricity went out yesterday for 3 Hours ! Damn was I getting irritated ...

Sick of being itchy and peeling

I thought that the worst is behind me , but now I see the Rash on my chest and Back ! Again ! I guess it has to do with more then one layer of skin ! This is not only aggravating but also very annoying . What is wrong with this picture ? I have called last Thursday to get my Pegasus shots and Ribaviren Pills. Pharmacy said that the Dr. has to authorize it . Called the Dr and just couldn't get any answers. in the week ( Friday ) I got a call from Holly ( Dr. Albright's  Nurse ) She said that the Dr. will authorize it Monday . Monday came and went and I didn't hear anything . Finally this Thursday I called the Dr.'s office and again they played this " Can u hold please " and then I waited for 30 Minutes before I got the receptionist . I told her that I needed to talk to medical staff but they said there was nobody there right now so I left a message with the receptionist . Finally The Nurse called back and insured me that I will get my Medicine on time . In the mean time I get a call from the Pharmaceutical Co. and they said that they did not have a authorization
yet. Boy was I pissed ! I got on that phone and called my Dr. again ! That actually pissed me off so bad that my rash started to flare up badly on my Hands and Arms . I could not get through ! That damn answering machine kept coming on and I was so annoyed . Then I was put on hold again and I finally asked for the Ext. of the Nurse and left her a message She called me back within an Hour and told me that the Dr. signed and she faxed it yesterday. But that was a lie since I talked to the Pharmaceutical Co and found out that they just now got it ! I am really upset with my Doctor because he should have gotten the messages . I WILL make a appointment with him tomorrow !

Still healing

I had a rough night ; just kept waking up .  Still realize my limitations and it is hard for me to just lay in bed . But I will be stronger soon and I just have to be patient . Hubby hired a young guy to put his Stationary bike together. James needed money so Weldon thought it would be a good Idea to help him . He did a good job and he is taking him out to eat . Tomorrow we hopefully get the damn Water heater installed . In the mean time I am glad we have a camper in front of the house and I take my showers there . Better then none at all
<< smile >>
I called Tina to tell her thank you for the messages she left me while I was sleeping .
Yesterday I didn't feel like writing because it was so depressing that all that 9-11 Stuff was on TV. I just couldn't watch it ... I have to concentrate on positive things .
Like healing and making plans for the Trip to Disney World . But it will be Christmas 2012 before we go . I want everything planned and booked by January .

Uncaring Nurses

I felt weak all day ! Weak and tired ! I didn't do much today but I cleaned some of the guest room up and washed clothe and folded them .
The Guy from Lowes finally showed up to measure the hot water heater. By Monday they will have it in . Rich and Kathy are coming Wednesday and we are all so excited . Husband finally reached his brother to have him come over Saturday when we plan a little get together with the Family . Our youngest Son is making some Steaks and we all just gonna enjoy each other .
After all nothing matters more then Family !
When I was in the Hospital I kept telling myself that this 2 shall pass but I was doubtful . It feels strange when you feel your Body shutting down and there is nothing you can do then pray . And praying I did ! My Body looked like it was just dying . I will share my Video with some of my Friends and my Family , but I have yet to listen to the sound . But I could not believe how bad and fragile I looked .
I also learned a lot about Health care and smaller government ! While I was in that Hospital I kept wondering why nobody would put any cream or sap on my wounds ! Everybody would just come in and say : Hi my Name is so and so and I am your nurse for today ..... I could not even talk to them . My Mind at this point was so fogy that I thought I ended up in the " One flew over the Coo cos Nest " Movie . After Hours of trying to figure out how to communicate , my brain signaled me that there where 3 groups of people coming in the room . People dressed in red scrubs , blue scrubs and people in green scrubs  There was a Black board on the wall where they wrote " Nurse "  " Head Nurse " and " Extenders " . It took me a while to realize the ones in red where nurses but not RN's blue was RN and they had the worst atitude . Some would come in the room and say nothing ;  with their name tags turned around ! Nobody really cared or showed any type of sympathy for me , the patient . They all worked like Robots , like they just tried to get their 8 Hours in . I have Never seen a more uncaring  group of health profetionals in my life . But when my Family came in ; there was a shift in frequence  of checking on me . If that is the smaller Government that the GOP is talking about then this country is going to hell !

My Skin is thin as paper

My skin is peeling and is healing up good . I always have my Mini Video Recorder with me and I did some Video while my Rash was getting so bad ... I am a freelance writer and I am always ready for a story . This time it was my own Story ! I am glad that I had the recorder with me because otherwise I would have no clue how bad it really was . Just watching the video without sound was very upsetting to me . Like I said it really was traumatic for me to come so close to death .

My skin is very thin around my wrists and elbows , The slightest scratch or bump makes my skin brake . I realize that I am still very weak but I will get better and I feel optimistic .  Every day I am setting myself small goals and when I accomplish them I am proud of myself. It is the little things in life that make me happy now ... My Family and my Friends are very important to me and they helped me through my bad days .

Just found out that our Nephew Rich and his wife Kathy are coming for a visit . They live in Tennessee and we don't see them often , so we are really glad they are coming .
Thank you God for getting me through these  rough days !

I look like a " Burn Victim "

On Monday the 29th of August 2011 , Hurricane Katrina's 6th Anniversary I had the worst night of my life ! I believe that I died that night . My Body looked like I had severe Radiation poisoning ... A Blood cancer specialist came in and made the remark that I might had " Steven Johnson Syndrome " .  My Husband was told that I might not make it through the night .
Tuesday 30th of August I finally got a phone call from  my Liver specialist at 7 AM . He told me that he was on his way . The next couple of days are still fogy . All I can say is this
" I am alive and I am convinced that I was saved by a higher Power . "

I can't really even write about it yet ... I have been home now for a week and every Hour is a triumph for me . I am healing up good , but my Immune system is still weak and my Platelets are still low . I am trying to get better and so far I can see a big difference from a week ago .

2 days and still no answers

How can you just get the best News in your life and suddenly everything changes in such a tremendous and traumatic way that even I can't piece the puzzle together yet ?
On Friday the 26th of August my Rash got a little worse but I had my Guard down because I was still in a daze about my Virus being ZERO . So I told myself to stay tough because it was just a small price to pay for this kind of Result . I kept taking my Oatmeal Bathes and took over the counter Anti Itch Medicine . My Husband kept spraying my Body with spray that cooled it down some but I was not a happy Camper.
Saturday I woke up with a headache on the left part of my Face , that made me feel like somebody was trying to push my eyeball out from the inside . I noticed that I was starting to get 2 strange spots on each of my thighs , that looked very different from my " regular rash " It looked darker and the texture felt rougher . That day I felt increasingly nauseated , irritable and anxious . I could not keep anything in my stomach that day but since I believed that I will just get " Over it "  I am the wife of a Soldier why was I being wimpy ? Shouldn't I just be tougher ?
Saturday evening I started to get a fever of 104.00 I was burning up and brought the fever down with fever reducers over the counter . It went back down to 100.00 and finally felt asleep .
Sunday the 28th of August I knew I had to go to the ER  as soon as I woke up in the morning . My Rash was all over my Body ; yes all over my Body ! There was not one inch of my Body without rash . My Husband drove me to the ER and by the time we got there I was really in distress . The pain increased and by the time I finally got admitted and we insisted  that my Liver Specialist will be notified  ; all I felt was this burning pain . My Husband left around Midnight and my nerves where on edge when I decided to go outside to smoke . When I walked around with my IV Stand , I tried to find a door and was told by a young woman dressed in  dark blue ( will get back 2 this Color later ) that I couldn't leave ! I looked at her and asked " Let me ask you something " Did I sign myself into a Hospital or a State Prison ? " She never answered me just gave me this evil look . I was not restricted in anyway by any doctor . I walked to the other side of the Hospital to get to a door and walked out . Alright , I admit that the graving of smoking made me want to go outside but as a American don't I have that right ? Who did I hurt ? But myself ...
When I get outside ; there is a man , also smoking and a Cop Car . The Man started a conversation and said that I looked like I planned the " Great Escape " I smiled and said all I want is to smoke a cigarette and that I have not had one in 12 hours . Made a joke about the old comercial  " I walk a Mile for my Camel Cigarette " Anyway , the Man told me that his son was in the ER and he didn't know what was wrong with him . I wished him luck he wished me luck and I went back into my room .
On Monday 29th of August ( 6th Anniversary of  Hurricane KATRINA )  there was still no sign of my Liver Specialist and my Husband called his Office to let him know what was going on he also called my regular Family Doctor since we been with him for over 20 Years and I trust both with my life . All day we waited and  my rash reached a new Grade ...
The 2 Spots on each of my thighs have gotten so dark and the top layer felt like Alligator Skin ! The Doctor that admitted me had stopped my Ribaviren and I was not happy about that  since I had 2 stay on this medicine in order to finish my treatment . But there was nothing I could do ! Later on that evening my Friend Theresa came by and it just made me feel so much better just to see her smiling face ! She looked like a Angel to me . Instinctively she took me for a walk just to get me out of that room for a while . We walked for a while and I told her that I was itching so bad on my back , she said I looked like I was sun burned  !  When she left my Husband came back for a couple of Hours .... It was hard for me to see my Husband so helpless because there was nothing he  could do for me . By the time my Husband went home and my Friend Theresa came back , she was shocked ! She said that I looked like someone put me on a Island and I had 3rd degree Burns all over my Body ! My Ears where now covered with these layers of burned skin and my Face and nose where showing signs of burned spots . The hardest part was " Nobody did anything to give me relief by putting anything on my skin " The Nurses acted like I was a Number ! When Theresa left that night I felt like someone poored Gasoline all over me and set my Body on Fire , the pain was that intense !

The best news EVER for Geno type 1a

Went 2 see my Dr. and he told me the good news . I am Virus free ! My Virus Level was in the Millions ! The Teleprevire has knocked my Virus out ! It is a new drug for None Responders . In 8 Weeks my Virus is gone. Now I have to take the Teleprevire for one more month and Chemo shots once a week for the next 6 Month and Ribiviren Pills .
It was hard at times and I almost gave up , but now I am planning a Disney World Trip w/my Grand kids and Great Grand kids ...

 

8 Weeks on Treatment

 I know I am a little late posting this ; 4 some reason I had to really make myself 2 do my Shot ! I waited til' after 10 PM and also waited to the last Minute with my " Wonder Pills "
Because I know that with each pill I take my Rash is getting worse and with each shot I get weaker . But what the heck ; I did it .
I will have some Answers in less then 14 Hours . I hope I can sleep tonight . I am so anxious about my Dr. Visit .

MY RASH from the Medicine for Hep C

Here comes something gross ! I can not believe that I feel like I am on Fire ....

Had to make these pictures just so you all can see what it looks like

I am on FIRE ! OATMEAL Bath and spray is the only thing that helps a little .....
I can't wait 2 see my Dr. tomorrow !

My Husbands response 2 UPS

Back 2 last week when my Medication  did not come on time ; my Husband wrote a sign and left it by the door for the UPS People . I had no glue that he did that . When UPS came and brought my Stuff I saw this Cardboard sign 4 the first time . Here is something 2 smile about !

His spelling was off ( no spell check ) But instead of beat on the door until the dogs go nuts , he wrote " beat the dog til they go nuts ! UPS Guy and me both laughed so hard !

Another day in the ER ....

Never in my Life have I ever felt like this ! My first 7 Weeks of Treatment where not bad at all. I was so positive about everything that I just knew I would slay the " Dragon"  I know it is important to stay positive . But I am the weakest link and don't know how to deal with  this crap anymore ! My Rash has now spread all over my Body , my arms my legs, my back and my neck . Husband went to Drugstore and got me Benadryl and Bath soak ( Oatmeal will help ! Most of my Advice and Support I get from Teri Gottlieb's Website on Facebook.
I have finally stopped itching , Husband sprayed me with stinky stuff and it worked . My back is bloody from scratching and I am getting little Blisters. Someone told me that when I see Blisters 2 go to the ER right away. In the mean time I am still weak ... Mimi , I am so sorry that I missed your call but I will be in touch as soon as I have spoken  to my Dr. I miss you all and thank u all for the wonderful encouraging words ...

5 more Days before my Dr. will see me !

I haven't written anything since last Wednesday . I just went in my Cocoon and try to stay in Bed . I have no strength ... my body feels so weak and my spirit is broken...
I spend Hours just laying in Bed and praying .. I woke up Thursday and noticed a Rash that is halfway around my whole Body Every inch of my Body is itching ... My God people ; I don't think I can wait until Thursday . I got out of the ER on Monday August 15th . My Appointment is the 24th of August .
My Dr. has not called at all ! Yeah, I am pissed , and I am so angry that I am afraid that I will just blow up when I see him .
Needless 2 say : My poor Husband  don't know what else to do !
Maybe it was the craziest Idea to write this stupid Blog. ..

What do you do when you just don't want 2 go on ?

I know it sounds crazy but I feel so drained and disappointed that I feel pretty hopeless today.  I feel so weak again and I am shocked that my Doctor would not be able to talk 2 me
The Receptionist was a real snotty BIATCH ( sorry , my Blog , my Words ) and if I find out that the message was not passed on to him I will blow another Casket .
The Emergency Doctor told me that my Platelets where down to 20 and to instantly go see my Doctor the next day .... Well, I am very down about it and feel like a Number again.
I am not sure if I can make it through this Treatment or if I even want to go on period . But I do know one thing : I had a wonderful Life and all my Affairs are in Order ! ( Just being organized ) I am not at peace but I feel like I am going in the right direction , in my Mind ...

My Meds never came FRIDAY !

Boy , am I pissed ! Friday I was home all day , and the UPS Lady left a notice in my Mailbox to let me know she was unable to deliver the Package . She came by today and honked the Horn ! Never did she come to the door , I went out and I told her where to shove this package because all my Medication was spoiled. I ripped the Box open and showed her the shots that where hot as hell !  Not usable ! She was rude and I just let her have it . I told her that this Medication costs between $ 40- 60 000 ! She left me standing there with my Package , in tears and left ...
Well I got on the phone with UPS waited on the phone for 30 Minutes to finally get a person to speak to. By then I was so damn mad I actually think that they heard that in my voice  ( LOL )
Again I was put on hold !  Finally I was able to put a complaint in against the Driver ! Then I called my Pharmaceutical Company and told them what happened , they promised that they will send me new Medication and not to take the one that came today ! Then UPS called back and gave me a Tracking Number for my Complained and insured me to have a talk with the Driver and there will be a Investigation ! I said " I sure hope so ; because it was the drivers Fault for not coming to the door instead of honking the horn . I am glad my Husband was not here because he would have been so embarrassed because I was so loud ! I don't care . .. This Treatment is kicking my ass all of a sudden and I don't have any strength ! I called my Dr. and just talked to the receptionist and she told me to go to the ER Immediately .
Then I called the Nurse of Pegasus and she was so nice and calmed me down pretty much. Her Name was Pam and she is a registered Nurse . So, I am feeling somewhat better but still weak but not like I am dying . So, now I will lay down and drink as much water as I can ... God help me ... Keep me strong and keep me alive !
Phone just rang and it is a woman name Teri from UPS she started to get really load with me like she was speaking to a person with no hearing ! She said that the delivery Driver said that my Iron Gate ( Burglar Bar ) was locked and she rang the doorbell .  So not true
So then I told her not to take up for her Driver, after I told her that I was home I asked her if she is calling me a Liar 2 now ! So, that was a short phone call . On my way 2 ER now

3 days in Bed ... get's old

Wednesday , Thursday and Friday I spend in Bed ... I was so weak that I couldn't even think straight. I kept sleeping and then just laying around thinking . No TV..... Just darkness and me and my Dogs ...

People are not always what they seem to be !

Sometimes we believe that everybody is good and decent . But we live and learn and find out that sometimes what we see  people is not how people  really are . I much rather forget about Saturday and the disappointment I felt when my Friend who I was trying to treat suddenly tried to take Advantage of me . I gave her $ 40 Dollars to play with and 20 Minutes later she asked me if I could lend her $ 20 I said I couldn't . Then I won a few bucks and she asked me again I gave her $ 20 and told her to be ready to eat in 30 Minutes because I was already aggravated . Then I found out that my Coupons where no good so I had to pay cash for the Meals $ 60 . I couldn't wait to leave there ! And I don't think I will ever do that again !

I don't participate in Life anymore

I know the symptoms ; I am very depressed for what ever reason ! It doesn't matter but I have to get a grip on this . What the hell is wrong with me ? I don't want to admit it but the drugs are finally getting to me again .
Again it is a familiar feeling , because I felt like that when I was on the other Treatment . Please don't miss understand me , but I have been feeling so week and just want to be alone ! I want nobody around me ! I just need a attitude adjustment and I don't know where to turn right now.

I will always feel like a Have a   stamp on my Forehead .
Why I am I so weak suddenly ? 6 Week's in  Treatment and it is tolerable but please people get on Anti Depressant  , get double Dosages .

Well , I made up my Mind and take a old Friend ( we go back 2 over 20 Years } I invited her for tomorrow and I want to treat her to Casino and a nice Meal . She is 62 and has  had a terrible couple of Years . Something tells me that I need to this !

What a day...

Really feel like I am on Fire ... Like Eminem sings .. Went to the Air force base since we found out that you can not have the Id Cards done at Stennis . So we had to drive all the way to Keessler Air force  Base in Biloxi again . Well, not much you can do when you need the extension  for your Id Card . So we had no problems get the Id Card but had to wait for finger printing . We went and ate a slice of Pizza and he said he be right back . DON'T DO THAT TO ME ! 30 Minutes later he was still not back I got madder and madder . So I walked around which wasn't pleasant considering I have PROBLEMS IN A STRANGE AREA
So needless 2 say , the whole trip home we didn't talk. I really had nuttin <<< (my word ) to say .Then we got home around 5 PM and I went to Bed . Personal problems will bring you down deeper and faster then anything else can. I wanted to go to the Thrift store but he didn't. That is just fine with me ! I have a I d Card forever now . So that was the last time he had to be a prick....
I slept for a couple of hours , ate a Banana and 2 Protein shakes . And stayed in a coma .

Today is Tuedsay ! Yuk,,,

 Well, I did my 6th shot . Feeling a little blue but I am confidant that I will beat this !  I did sleep most of the day , after I went for Blood tests . On the 24th I have my next Appointment with my Dr. I am anxious and nervous , scared and confidant ! Weird ; all in one I know that this will be must last chance of beating this Virus that changed my Life forever.
But it will not defeat me : )
I have noticed that my fuse is very short ; well, I have no patience and I need to learn  not to explode . But I wait and wait and then you can stick a Fork in me ; because I am done !
Like I said in one of my other Posts : It is not easy to live with a Veteran that has PTSD and is Bi Polar . He is very moody right now and I am worried because there is nothing I can do right now . He had to see a shrink from VA and after 2 weeks she was gone ; then he opened up to another one for the last 3 Month , now she is gone . Yeah, he has every right to be pissed . So now he don't want to go at all , is sick and tired of being bounced around and I can't blame him.... But I have no Patience right now . You want to change things " Write, send it to the paper , write and tell your congress people and your elected official . Don't just let it go ... You have to fight those Bastards ; for what you untitled 2. What you were promised ! Anyway don't get me started !
Back to my shot... I make him participate now , by making him hold my fat spot so I can inject .

Well, for those who are trying to get on this Treatment : You will be surprised , it is not as bad as the old Treatments . 

Stay positive don't let nobody bring you down . 

2012 is coming soon .....

To even think that a Man who leaves his wife when she tells him she has cancer , could lead our Country ; makes me sick to my stomach ! Ok, I am on a political Rampage today ! 'But what do we have to pick from ? Bachman lives in her own little world and so does Mitt and Gingrich ... Well , I don't vote for either of them that's for sure .

I must save my Oil !

The Crimes of G W Bush !

 

Just can't let this one go ! What a Dumb Ass ! He should be in front of a Military Firing Squad  with Cheney and Rumpsfeld ... Shame on this Criminal ....

Why am I bleeding so easy ?

For the last couple of weeks I am having a lot of Nose Bleeds. It is kinda weird, when it happens ; because it comes without a warning . I just run for Paper Towels , I made a appointment with my Dr. for the 24th of this month . Yes  it will be my " Moment of truth " Week . Going into my sixth week tomorrow ! God please let my Virus be gone ! I need some good news ...

My Official Bucket List

My Treatment would be half as stress full if my Husband wouldn't be a Veteran with PTSD, RLS , Depression , Bi Polar and a Heart Patient. No, it's not a " bitch about the Husband " day its just  life ! Between being a care taker and never knowing if I wake up w/ Dr. Heckel, or Mr. Hide , my nerves are  pretty much shot the passed 2 days.
I am very worried that the peace I have been feeling for the last 5 weeks just went out the window . But don't worry I will keep on trucking. This Treatment is just to important 4 me .

Bucket List
1.)  Disney World 
     w/ da Great Grand kids and Grand kids
2.)  Jumping out of a plane with my Grandson Jason
3.)  Making one more trip to Germany ( really just want 2 see my sister again )
4.)  Making peace with 3 people
5.)  Going 2 Texas 2 c my Friend Doris
6.)  Go 2 the Zoo
7.)  Going back to South Dakota
8.)  Straighten my WILL out
9.)  Jello Stone with Camryn
10.) Walk on the Beach ...
11.) Tell my REAL Friends that I love them
12.) See Rhonda's Grave again  
13.) Watch my Great Grand kids graduate
14.) Make 20 Beach Gifts 4 Friends
15.) Make the CD's 4 Mothers day 2011
16.) Make 20 Kitchen Witches
17.) Do something really selfless for somebody every month
18.) GET WELL
19.) Stop and smell the Flowers

Am I alone in this ?

Today is one of these days , where I am just fed up ! I have to ask myself :  am I really in this alone ? Why can't a spouse  understand what You are going through ? It could be less stress full if your spouse supports you . But I guess that is 2 much 2 ask sometimes ! Maybe I just ask 4 to much ....
I know one thing : this decease has changed me so much ! I don't eat shit anymore , I will no longer be the little Lady that gives in all the time . I have grown so much in the last 5 weeks and I see everything pretty clearly . I have no longer Blind folds on . I am a grown 54 year old woman and it is time I live my life the way I SEE FIT !

If you have Hep C ; TALK about it ! Educate people

Hepatitis C is a dangerous disease that can cause a number of health problems for those infected. The virus is different from hepatitis A and B because, with successful treatment, it can be cleared from the body. Clearing the virus reduces the danger it poses to your liver.

Getting treatment for hepatitis C takes a lot of commitment and learning what to expect is a good way to prepare. Start educating yourself today by viewing the information in the links below and talking to your doctor about treatment options.



What is the Liver ?

The liver is one of the largest, most important organs in your body. It is reddish brown, about the size of a football, and can weigh up to three pounds in an adult. It's on the right side of your abdomen (or belly) behind your lower ribs and has two main sections or lobes.
What does the liver do?

The liver breaks down and removes toxins from the things we eat, alcohol we drink and the medication we take. The liver helps us digest fatty foods and it also makes many chemicals our body can't live without. You need a healthy liver to have a healthy body. Here are a few things your liver does for you:

    * It helps clean your blood by getting rid of waste products, drugs (over the counter or street drugs), alcohol, and other toxins
    * It helps control some of your body’s hormones
    * It helps control most chemical levels in your blood
    * It produces bile, a yellow-green fluid that helps digest food. Bile also helps carry away liquid waste and solid waste
    * It makes proteins that help stop bleeding so injuries can heal
    * It helps remove bacteria from your bloodstream to fight infections
    * It stores vitamins, sugar, hormones, cholesterol and important minerals like iron, so they can be released into your bloodstream when you need them
    * Getting Ready for Treatment
    * Understanding Treatment Options
    * How to Have a Healthier Liver
    * What I Know About Hepatitis C Treatment

Don't take anything for granted !

" You just never appreciate your health until you are without your health " ... The Rock

It is not  like you take your health for granted but you just expect to feel alright forever.   So you really have to take care of yourself now ! Eat a lot of fresh Vegetables eat lean meat , lots of Salads and greens . And don't forget fresh fruit ! It is important to eat right while you are on Treatment ... I know it is hard because of the lack of Appetite but you have to force yourself .. I used to just skip meals , now I try not to fall back into that again .

 I had a fun afternoon . Went to the Am. Legion Post and helped set up for Steak night . But one of the AC 's didn't work and it was hot as hell there . Met my Friend Theresa there and we just BS for a couple of hours . And God knows I needed a brake today !
So I talked to some of my favorite Veterans today and had a great time .
I was pretty tired when I got home around 9 PM and I finally watched the Movie
" Lincoln Lawyer " and it was a great Movie ! I am so glad I watched it ...
Chill time , and Pill time ... Nighty night ...

Sorry , but sometimes I have to vent

I can't believe I actually wrote about Rhonda ; It is the first time in 6 Years that I actually wrote about it . There is much more to say about her but I want to get back to my Treatment because I can't deal with writing more about the Funeral .

We had rain all day and it is kind of nasty outside . I got up at 8 AM took my telaprevir and Ribiviren , did Laundry , put clothe away , mopped the floor and cleaned the Bathroom. I feel like a Zombie today for some reason . I worked out a little bit with my Wii and felt really good.   Then I made me some soup and now I feel like shit again . My Stomach just feels sour and I am nauseated . I am going to watch a Movie now ! " Lincoln Lawyer " . I will let you all know how good it was . My Friend Liana said it was great . Anyway, I think it was a good idea to write this Blog , it gives me a chance to get things of my chest without bothering anyone with all my weird worries and thoughts ... Sometimes I like to be in Isolation ! I have days like that , but tomorrow will be better : ( I am sure ...

There is nothing worse then losing a child

In 2005 my Step daughter Rhonda decided to come for a visit ; she called me and asked if it was ok to bring her Mother . I said " Sure , I always wanted to meet the Mother of My Children " . We laughed and planned her trip . Finally in May they come and see us . We haven't seen her in 3 or 4 Years and wasn't sure why she had no contact with us  in that time I finally met Brenda and welcomed her and tried to make her feel comfortable . I wanted her to make peace with our 2 boys , that she left when they were 10 and 14 Years old . We all had a good time and met our Grand daughter Shelby  that Rhonda had in 2003 . Our youngest son works for the Sheriff and told us that Brenda could stay with him. He is dating a Philippine Woman named Myrna and she tried to make her feel comfortable . I had my Doubts because our youngest Son is  a little revengeful and does not do anything   without a thought behind it ! We found out from his Girlfriend that he ignored his Birth Mother the whole time she stayed with him .I understood that he was hateful towards her but it was time to move on and make peace !
Rhonda wanted to bring them together and she  knew I supported that thought .  We went to New Orleans with everybody , when my Grandson and his Girlfriend arrived a couple days later . Beth was pregnant for Jordon and Austin was about 2 Years old . We had fun and took many pictures . But Brenda was always hiding behind her Sun glasses .
When they left for the Airport on May 17th ; we had no glue that we NEVER  would see Rhonda alive again !
Brenda called us on July 4th and told us that Rhonda was in the Hospital and that she didn't know what happened  . I told  Weldon to get packing and within an Hour we where on our way to Goldsboro North Carolina .
We got there the next morning and we went straight for the Hospital where we met with Brenda and her " New Daughter Tori " the reason why she left my Husband after 14 Years of Marriage . We asked them Questions and they kept saying that Rhonda's Boyfriend Ken called the Ambulance and they didn't know what is going on . As soon as Ken came in I took him out in the Hallway and asked him " What the hell happened " and he told me that they just made love and when she got up she felt dizzy and she just fell over like someone had shot her .
Later on that afternoon we finally got to see her and she was connected to a lot of Machines and I felt the cold room like death has been here . My Husband said " She looks like Charlotte " and he started to cry . Charlotte was my Husbands sister that died in her 20 Ti's of Hodgkin Decease . I touched her feet and they where ice cold . My Grandson kept trying to open her eyes and we all cried a Million Tears . When we finally got to speak with the Doctors ; we found out that she had a aneurysm and she was already brain dead . She was being kept alive because she was a Organ Donor !
I will never forget the pain in every bodies Faces and the tears and the pain ! I was worried about my Husband because he had a triple Bypass 2 Years before that .  It was the worst day in our lives ! And we just couldn't believe it ...
Our Rhonda , my Friend,  our son's sister, Jason's and Shelby's  Mom was no longer alive !

Hepatitis C is a epedemic

Hepatitis C

Hepatitis is a disease characterized by inflammation of the liver, usually producing swelling and, in many cases, permanent damage to liver tissues. A number of agents can cause hepatitis, including infectious diseases, chemical poisons, drugs and alcohol. Hepatitis C is a contagious viral disease that leads to serious, permanent liver damage, and in many cases, death
 Please go to this site if u have to gather Information http://www.epidemic.org/

I remember how shocked I was in 2001 when I was finally diagnosed with this disease and found out that there is no cure !  The first thing I thought was " You are dying " ! But I started to read anything there was to read about Hepatitis C . My Fathers words where still ringing in my ears ( "  You have to get to know your Enemy ") He died in 1980 of Lung Cancer and never did see me making something out of myself : while he was alive ...
So , my advise is " If you just been diagnosed , learn as much as you can about the Virus and then find a good Doctor " 

Even the bad days are good days

Got up @ 8 AM : just couldn't lay in bed anymore , my Back was hurting and I figured might as well get up . When I stepped on the Scale I was sure the scale is broke ! In one week I have lost 7 Pounds ! No I was not excited because I would like to lose a few pounds but not in one week ! Not healthy ... So , I been drinking these Protein shakes and eat ( Weight W )
Ice cream just because I want to lose it the right way ... Yeah.. right .

So I am telling myself I have to get out my PJ's and do something around the house . So I get dressed and fix my Hair ... by the way I like my new Hair due : ) Not cut by my Friend Mimi but pretty good : ) By the time I walk from the Bath room to the Living room ( it is not a long walk LOL ) I feel something wet dripping on my Shirt .... I look down , it's Blood .. But I was not 2 excited , just ran for the Paper towels ... but then this feeling of Iron in my Throat .... I am spitting up Blood .... Hubby freaking out telling me not to panic ( I was calm ) He told me to lean back and I kept spitting up blood ! He is gagging ; I am gagging .... actually it is funny now ! So not funny then ! In the mean time I feel a Headache coming , now Hubby ( used to be a first responder ) is thinking I am having a stroke ! I  put Ice in the back of my Neck told him to calm the f.... down and just laid back . It took about a Hour when I started to feel better ! Hubby looks at me and said
" Do you know I have a Heart condition ? I can't handle this kind of Stress " Boy did I lose it ! WTF... Does he think I enjoy to be or feel like this .. These damn Army guys are just wore out when they retire from the Military ! So , I get up telling myself " Remove yourself from the Situation " and went in my Office and turned on EMINEM . For some reason I can relate to his Music and his way of expressing himself . ( Don't ask me why ? ) Anyway , after Hubby went back to bed, I think he was exhausted just from the stress.. I decided to get something done and changed my Blinds on one of my Windows cleaned the windows and did laundry . I called my Doctor and told him about what happened and he does want to talk to me Friday when he has the new Blood results . Dark Blood is not a bad sign he said , but since I been bleeding so easy now he wants to find out why .

My Great Grandson's Austin and Jordan and my awesome Friend Beth ( Partner of my Grandson Jason ) Just feel like sharing : )

Then I called my Friend Sigi , in Germany and we talked for about 2 Hours on the phone . It made me feel so much better . Well, since I had such an exciting day I am chilling out now ... Found a great way to get rid of my nausea !  " Ice cream " and if you believe that then you don't know me at all ! Love you all ; and if anyone ever has a question and I can help ; please let me know !
Ok one more picture of my handsome Grandson Jason !

The best Christmas EVER 2010 when we surprised our Grandson and his Family ( Beth was the only one that knew for 2 weeks , that we where coming ) Yes we are mean people and made her keep this Secret for 2 weeks ! I will upload a Video on later one that he hasn't seen yet either ! LOL It is so cool to be a Grandma : ) I miss them so much ! But they give me the drive to push myself ! We want to take them to Disney World next Year when I am Virus FREE !

This is a update on the FT Hood Killings !

http://www.abc6.com/story/15052968/fort-hood-suspects-defense-has-few-options?clienttype=printable

Just thought I share this with you !

I always have to make a Statement !

Blood work done in the morning ! Only this time they forgot 2 put some more Pressure on it . By the time I left ; blood is running down my legs ! Grrrrrrr..... But my blood is so damn thin right now that anything will make me bleed ! Anyway to day is week 4 ! I messed up somehow on my Telaprevir : I thought I took them and so I didn't realize until I take my Laundry out ; that I washed them !!! Yes 2 Tablets , very clean !! So I looked at the pills but no water got in . So I took them anyway ! What the heck .. they where clean !
Then I drank a shake for muscles and a shake with my Shot tonight ; for the Protein .
I have to admit that I am getting a little Brain fog : ) Took my first 2 pills at 5 AM and the next 2 Pills that I should have taken around 1 PM I took them at 5 PM, now I am all screwed up and have to take the next pills 1 AM . It is such a routine and I still screwed up , but before I miss a dose I take 'em anyway . Well tomorrow is another day and I will do it right !
Makes me sick just knowing that some people can't afford their Medicine ! I already did my shot and Hubby actually held my " Fat spot " so I could inject the Pegasus : ) He had to look away ... But he did it ! I am running out of Fat spots ( as I call them ) . I hardly eat anymore and if I wouldn't drink those shakes I be in trouble . Just not hungry ! No Appetite ! Like I said tomorrow is another day !

Hanging in there and being hopeful

I have been on cloud nine since Friday ! I just know that this drug is helping me ! I just know ... Sometimes I get confused about the days but I have to write everything down now . I am taking the Telaprevir now @ 21: 00 9:00 AM and 5 PM Had 2 switch time up a little !
So far the only Side effect that is bugging me is spending lots of time on the porcelain Chair ! LOL
No matter what I eat ; it is going right through me , but it works on my weight LOL . Been buying power shakes with extra Vitamins just to get some food to stay with me . Needless to say , I can't go to far from home now ! : ) Toilette Paper Co. is making lots of money on me !
The Alarm clocks are driving me nuts ! It seems like 8 Hours are 2 Hours and I have to remind myself that 8 Hours is 8 Hours ! Crazy !
Fatigue is getting a little worse and I have to make myself get out of bed ! Actually today I did some Laundry and moped my floors . " When feet stick 2 Floor it is time to mop " LOL
I am dreaming the same dream over and over again ! I am in front of a big group of people and I give Lectures on how this Drug made me well ! Never ever give up ! I have a Friend in Germany and she will try to get on the List for this triple Cocktail ! I am keeping her in my prayers because she need this drugs ! I am making plans for next year .... When I am well, I have to make up for all the time that I been sleeping ! In the mean time I am sitting on my Porch and enjoy my Rock Garden